°C stands for Correct temperature and °F stands for Freak temperature
Reached the point of chronic illness where im becoming excessively bitter whenever i see people around me being capable and living without pain, saw 2 people walking a dog outside my window and had to take a breather 😭
Kinda fucked up that we all coo and sympathize with "former gifted kids" but never talk about the students who had to stay late after school or over the summer for remedial classes/clubs, who struggled to get above a C, who were given up on or punished. Who tried so hard to understand or just couldn't. Who were grouped with the "stupid kids" (a classmate called us that in remedial math btw)
Autistic kids and adhders who can't relate to their gifted peers and are constantly alienated by them. Kids who struggled in school due to dealing with a chronic or mental illness or physical/learning/developmental disability. Those of us who have had to drop out of highschool or college. Kids who worked so hard and wanted to be seen as smart, but never were. Who watched as their peers seem to fly by them in school, while they were left behind. Who were bullied and put down by those in the gifted and honors classes. Whose confidence was absolutely destroyed by education.
I love you all and I'm so sorry the school system failed you. I'm sorry you weren't properly accommodated and given the education you deserved. I'm sorry people put you down for something that they never had to fight for.
if you’re starting a sentence with “as a white person” “as a cis person” “as someone who’s skinny” etc etc that is your sign to stop ✋ and consider if what you’re about to say is actually that important, or if you’re just expressing your penitence to the exact group of people who would really rather not hear you talk about how guilty you feel. like maybe just think for a couple seconds about why you feel like you have to finish that sentence
I am still learning! I am allowed to make mistakes! Big mistakes!!! Huge mistakes!!! They will not stop me from growing!!!!
I was accidentally 15 one time and basically there’s Problems forever because of this
If you feel the need to gift your chronically ill friends things for whatever reason, here is my "starter pack/gift guide"
A pack of their favorite gateorade flavor, great for hydration, tastes good, easy and quick. Body armor, prime, etc are also good options if they dont like gateorade
Some of their favorite powder electrolytes. Liquid IV and drip drop are some good options. There are also the generic brand electrolyte packets at Walmart, I think they taste good. There is also bouy if they like the squeezy ones, i dont but if they do bouy has an unflavored one as well as like 30 different options
Kt tape. Regular, extreme strength, cooling, heating, literally any type of kt tape. They can probably find a use for it. Most ((not all but most)) chronically ill people, at least the ones I know, suffer from some type of joint issues and kt tape is a life saver. On this vein, I would stray away from braces unless you know what joints/muscles specifically give them the most trouble, kt tape is a bit more versatile
Compression socks, there are cute ones on Amazon, Walmart, many small business sell some nice ones. I would go for a higher compression, or at least upwards of 15 mmhg, for the best chance of them being worth it
Temperature devices, im putting these in the same bullet point bc it felt unnecessary to put ice packs and heating pads in different points. Ice packs are really nice for swelling and heating pads are really good for pain. Both are a good option ALWAYS. I will say, the reusable ice packs give you a better bang for your buck than the single use crack and use ones.
Their comfort foods. A bit of an ed tw for this bullet point, but i have noticed quite a few of my fellow chronic illness sufferers deal with an ed, and while it isnt all of us, those who do probably find it a bit extra hard to eat on rough days. So comfort foods/snacks
If they have to take their blood sugar for things, lancets. They usually come in like 100 packs for really cheap, like under 5 bucks cheap. Just check to see the brand of their lancing pen before you buy them tho
Batteries, it sounds weird but stay with me. Do you know how many medical devices I have that require batteries?? MANY. My hr monitor, my glucose monitor, my blood pressure monitor- like bro, a pack of triple a batteries will mean more than you think trust
A weighted blanket/stuffie. Stuffies are cute and easy to carry around, blankets are nice when you need some extra weight
If they have a service animal, an accessory for their vest/leash/collar could be nice
One of those reacher things that grab things for you. I want one of those. When your stuck in bed, cant move, ill, in pain and suddenly drop your mother fucking phone cord off the side of your bed and now you have to MOVE and grab it- 10/10 worst experience. One of those grabby things would be amazing
A migraine cap. I got mine from target but I have seen them at Walmart, on Amazon, weirdly one on depop, some on shein, some at places like tj maxx, etc. Migraine caps are especially wonderful for those days where your shut in your room, blinds drawn, fans off, three ice packs on you in constant rotation, barely mobile and for some gods forsaken reason your blinds wont close all the way so the light keeps catching your eyes and making you want to lose your ever loving shit bc you cant move to fuck with them. And more normal experiences Im sure lmao
If your short on funds, just being there with them, listening to them, watching a movie, body doubling so they can get some help with chores, running errands with them, literally anything so they remember their a human person with human feelings that you love and care abt. Who knows, it might help you feel better too
More than anything, listening to what they want and need is a bigger gift than most think
The hardest thing for me to accept since becoming disabled is the fact that my progress in the majority of things that I do will be so much slower than it is for everyone else.
I'm trying to reframe my thinking and start being grateful when I can partake in hobbies and just enjoy the process instead of being focused on how quickly I'm progressing compared to able bodied people.
I've always been an "all or nothing" type of person and that type of thinking really doesn't work now when I have to pace myself and allocate my energy each day depending on what needs to get done
Like a half hour after taking pain relief meds: oh actually it doesnt hurt anymore i probably didnt even need to take those
blogging from the depths of autistic burnout • he/him • adult
300 posts