Yay!

my number one woman behavior is saying i’m fine with any pronouns and silently ranking people in my regard based on what they do with that information

Somebody shared the following today saying: "I found this video on tiktok and it explains m.e so well" and "I saw it and thought to myself I relate so much" Here's the TikTok link: https://www.tiktok.com/@jeremyandrewdavis/video/7135061608316833070

theres a petition going around for ssi that can allow disabled people to have more than 1000 dollars to their name. please consider signing!

(this helps disabled people outside of those with sma, but this is personalized for sma.)

This song is such a fucking gift

January was a tough year but we made it

Liz Fosslien

I'm really fucking tired of watching my husband suffer so much because I'm so sick. I feel like people don't talk enough about the trauma spouses go through, watching the person they love most in the world continue to deteriorate constantly.

Had a doctor appointment today where I found out officially (I suspected this would happen for a while so it's not exactly new information) that I'm going to most likely need a proctocolectomy and an ileostomy. Which basically means they're going to chop out my colon, sew by butthole shut, and give me a stoma on my abdomen where I shit into a little bag. Cheers.

Obviously I'm having feelings about it but that's not what this particular post is about.

He has PTSD from watching me almost die from a bowel obstruction and having two emergency surgeries, a bowel resection, end up tube fed, and then on TPN. Obviously I survived all of that, but he's still really, really impacted by it. Then I got a brain tumor and had brain surgery, which was a whole ordeal. He struggles so much every time I'm in the hospital.

So for me to be having serious GI surgery, arguably the most extreme surgery I've ever had besides my brain surgery, is so triggering for him. And what can he do, just grin and bear it? It's fucking awful, and I know that I'd rather be the sick one instead of the one feeling powerless and alone in the face of all biology can do to wreck a human.

so here we are again. fuck it, sincerely.

There is a new Chrome extension that detects if a video you’re streaming has a strobe in it, will freeze the video and stick this warning up there until you approve it.

WHERE THE HELL HAS THIS BEEN ALL MY LIFE????

Hey, able-bodied folks, if a disabled person is complaining about something being unfair/inaccessible because of our disabilities, you know you don't have to explain to us why that unfairness/inaccessibility a thing, right? Chances are we know it is the way it is. It's still unfair and we still want to talk about it.

I saw a video by an amputee warning other disabled people not to go to Thorpe Park in England, as they paid full price to enter, but were only allowed on 3 rides due to their amputation. This is something I also experienced when I went to the Gold Coast (mostly at Movie World, Wet n' Wild and, to a lesser extent, Dreamworld) and at Lunar Park in Sydney. There were also several others in the comments talking about similar experiences elsewhere.

But among these comments were dozens of people saying, "it's for health and safety reasons! The ride won't be able to hold you in!" And like... yeah, we know why. It doesn't make it any less unfair that we pay the same as you for a fraction of the experience. It doesn't make it feel any less shitty when you scrimp and save to do something like go to a theme park only to have to sit on the side line and watch your friends/family have fun without you. It doesn't make it any less scummy that there's very little warning that this will be the case (most of the time) until you arrive. It doesn't make it any less frustrating that so many recreational and fun activities don't even consider the possibility that disabled people would want to join in.

It's not just this video. It happens a lot. Any time someone complains about inaccessibility, there's always someone there trying to explain why the inaccessibility is there.

A resteraunt or shop isn't accessible? "Have you considered the person just didn't know/didn't have the money to fix it/were renting and weren't allowed to fix it?"

You called to see if some place was accessible, were told it was but when you arrive, it's not? "Have you considered the person didnt actually know/ thought it was and just made a mistake?"

You complain that a device/item/furniture item you bought isn't usable because of your disability despite there being no indication this would be the case before you bought it/no way to further verify it before hand? "Have you considered that disabled people make up such a small minority of their buyers they just didn't realise?"

Yeah, we know. Every single one. We considered it. a lot more than you did, i promise. We know why. We know sometimes mistakes happen, people don't think to consider us, there could be health and safety reasons for the lack of access, that people just don't know, and that it's not usually maliciousness or intentional ableism. I promise, we know all of it. We still need to talk about it though, so things can get better.

Kind of weird how people are like oh so your doctors aren't helping you and are negligent.. have you tried trying harder to get help??