It’s a fucking travesty that the leading cause of bankruptcy in these United States is medical bills. Not credit card bills nor risky investments. Not even student loans, but hospital bills. Invoices racked up through freak accidents and diseases the patient certainly didn’t ask for and would probably prefer to live without.
To our readers in other, more civilized countries, you’re dismissed. This week we’re going to be dissecting a uniquely American problem: exorbitant medical bills and how to pay them.
The CEO of GoFundMe, an online crowd-funding platform, never dreamed that his company would become synonymous with “I’m broke and need $300,000 to pay for my child’s cancer treatment.” What he envisioned as a way for entrepreneurs and artists to raise money for their passion projects has become the last desperate hope of sick and injured Americans on the verge of total financial ruin.
It blows, dear readers. It fucking blows.
Keep reading.
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friendly reminder you dont need a diagnosis to be in disability spaces, as an example im in constant pain and fatigue, have migraines every week and my joints hurts to a point I can't write, but since familiar gaslighting/medical trauma and the fact that im an indigenous, brown skin fat man a diagnosis is fucking hard (but im in my way! :)) , but i still deserve a safe space to talk about my experiences and to feel valuable and supported.
never feel like youre interrupting someone's space or that you shouldn't be here cause you dont have a diagnosis, disabilities existed before diagnosis
Having conditions affecting the digestive and excretory systems is just so isolating.
Because even in semi-disability-aware spaces, talking about symptoms relating to the GI and excretory systems is still treated as TMI, as gross.
Even friends and family members are grossed out just seeing us put laxative in our water, or run to the bathroom all the time, or sit weirdly because of an immensely painful gas bubble.
And we internalize this shame so much that when we actually have to describe our symptoms in a medical setting, we hold back, and use euphemisms, because we're so used to having to do so.
It's so so isolating.
My face is having uncontrollable spasms. Great. It hurts really, really, really bad.
I think part of why I have trouble explaining pain to the doctor is when they ask about the pain scale I always think “Well, if someone threw me down a flight of stairs right now or punched me a few times, it would definitely hurt a lot more” so I end up saying a low number. I was reading an article that said that “10” is the most commonly reported number and that is baffling to me. When I woke up from surgery with an 8" incision in my body and I could hardly even speak, I was in the most horrific pain of my life but I said “6” because I thought “Well, if you hit me in the stomach, it would be worse.”
Do people know about Vocational Rehab? If you're USAmerican they have this in every state.
It's a program that helps disabled folks access education, training, and employment. For FREE.
You only have to be disabled to qualify (autism, ADHD, mental illness, physical illness, etc) and they cover very broad categories of disability. You do NOT have to be officially diagnosed yet when you walk in - they will even help pay for your diagnosis if you are struggling w disability.
I applied with my suspected autism and fibromyalgia, and they paid for 100% of my formal autism assessment.
Once your disability is established they will give you career counseling to learn about your interests and skills, and depending on the plan you create with your caseworker they will then help with school or finding employment. They paid for 100% of my college tuition and books, and even provided a laptop for me to use.
You do not have to pay anything for this program. If you make above a certain income, you will have to contribute to educational costs but will still receive assistance.
They will also help with the cost of things like mental health counseling while you work towards your goals, clothing for interviews, etc.
They cannot discriminate based on your race, gender, or sexual orientation.
They won't make you do excessive meetings.
They will allow you to do meetings with your caseworker remotely.
They will not drug test you.
They want you to succeed.
I'm sure that individual experiences vary but my caseworker was exceptionally easy to work with and very kind.
Vocational Rehab is a phenomenal resource every disabled person should be aware of. Here is the list of offices in every state: