My Sister Rang Me Today.

My sister rang me today.

Ever since she was six, she's had pain in her legs, which turns into pain in her hips and back for stretches of time. She's tried for years to get a diagnosis, with absolutely no joy. As a kid they thought she had collapsed arches in her feet; then it became clear her feet were fine, but something was wrong with her tendons; and then in her 20s they just shrugged it off with a "We'll never know probably" and that was that. She keeps on top of it with daily yoga, generally, though flare ups happen periodically. If she has to pause the yoga for some reason, she fairly rapidly regresses. Currently she has plantar fascitis again, which has halted everything once more, so right now she's back into a pain slump.

Anyway, she called me today while going from Doctors to pharmacy to get the codeine they've prescribed her for it.

"I think one of my yoga moves to help the fascitis might have exacerbated the legs," she said. "Trouble is, there's never been a diagnosis. I just have to trial and error what might help."

... And I had one of those lightbulb moments, you know? My brain suddenly went "Wait hang on, this is very familiar isn't it?" and rang the bells of memory.

"Did they ever test you for fibromyalgia?" I said.

They had not. It's never been suggested, even. My sister said she'd look up the symptoms and see if it chimed, and rang off.

Fifteen minutes later, she calls back.

Turns out she got to the pharmacy and gave them the prescription. While waiting, she googled fibromyalgia symptoms and found the NHS website.

"It was like someone had written a profile of me," she tells me on the phone. "Like, spookily, scarily accurate to me, right down to the temperature regulation bit. It felt like a practical joke."

And of course, as she stood there in the pharmacy, suddenly staring at the age of forty at the apparent answer she's been trying to get since she was six years old, she burst into tears.

"Oh no!" Said the pharmacist, hurdling the counter in a single leap and scattering the queue (I am exaggerating for humorous affectation.) "Quickly! Come into our little exam room, we'll get you tissues and water!"

My sister was duly ensconced into a Safe Place, and encouraged to cry it out. It took several hiccuping minutes, but finally, she managed to calm down and get back to an Extremely Watery Smile.

"Do you want to talk about it?" the pharmacist asked sympathetically.

"It's just..." my sister said, overwhelmed and searching for words. "My whole life I've been in pain, and they've never found why..."

"Ah," said the pharmacist thoughtfully. "Have you explored fibromyalgia?"

...

"TWICE IN ONE DAY," my sister yells on the phone to me later. "HOW THE HELL HAVE TWO SEPARATE PEOPLE ON THE SAME DAY FINALLY GIVEN ME THE ANSWER, AND NEITHER OF YOU IS A DOCTOR"

Anyway she has a doctor's appointment for tomorrow to discuss it, so we'll see

More Posts from Quandrixing and Others

8 months ago

Does anybody have that image of what cyberpunk dialogue is like. "to crack a cyber lemon this nasty" or whatever

7 months ago

do genuinely find it fascinating how indeed.com is like the biggest job-hunting website out there and yet manages to be profoundly useless in every possible way


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3 months ago

Find References to Draw a Head from Any Angle!

The web application returns images of heads at certain angles. Super helpful resource for figuring out how to draw a head at a tricky angle

Find References To Draw A Head From Any Angle!
Find References To Draw A Head From Any Angle!

With tags for emotions, glasses, different ages, and more!

Find References To Draw A Head From Any Angle!
referenceangle.com
Find reference images of faces in different orientations.
7 months ago

I feel like I should make a post about this because it’s not something that’s very well-known, and that Americans in particular may need to know about given the uncertain state of our healthcare system at the moment. I’ve wanted to write this out for a while, It’s kind of a long post, so sorry about that!

If you have an emergency and have to go to the hospital, you’ll owe the hospital a lot of money. (I got into a car wreck and broke my ankle and my arm. My hospital bill was around $20,000)

You’ll also owe the ambulance provider, if you need one. (My ambulance bill was about $800)

You may get separate bills from the anesthesiologist or surgeon. (My anesthesiologist bill was $1,700)

You may need follow-up appointments. (My orthopedic surgeon billed me for the appointments and his surgery together and it was about $1,000)

You’ve also got to pay for medical equipment you need afterward, like crutches or a walking boot. (Mine cost about $75)

Altogether, I ended up with almost $24,000 in medical debt from one car accident. That’s a really scary number for someone like me who makes $10/hr at a 12 hour a week job.

I got my debt down to $1075 by making some phone calls and submitting some paperwork.

The first thing I did was contact the hospital. They don’t make it easy to find, but many hospitals (perhaps most hospitals?) have financial assistance programs for people who can’t afford medical bills. I don’t make a lot of money, and I have bills to pay, so they were able to help me. I called the billing department and asked if they had any assistance programs for low income people who can’t pay their bills. I had to call multiple times, and I got transferred in circles by people who didn’t know what I was talking about. Finally, I got an appointment with someone in “Eligibility Services” (I don’t know what other hospitals call it, if it’s something different). I had to bring my pay stubs and copies of all of my bills. When I got to the hospital for the appointment, nobody knew what I was talking about so I had to wander a little to find where I needed to go. I spoke with the guy in Eligibility Services, and I waited for a decision on how much of the bill they would forgive. A month later, I got a call telling me it was totally forgiven.

I did the same thing for my ambulance bill and my anesthesiologist, but the process was a LOT easier. I just had to mail some paperwork and it was totally forgiven.

I didn’t bother with the medical equipment suppliers, since the bills came from separate companies and I didn’t feel like going through the process twice for $75. I was assured at the hospital that they had similar programs for debt forgiveness, so I could have probably avoided paying that too.

The only thing I couldn’t get taken care of was the surgeon/follow-up appointment cost, but they were able to put me on a no-interest payment plan.

Medical debt is scary because it’s something that can come from stuff that’s already really scary. I didn’t need the burden of $24,000 in debt on top of trying to get around on a crutch with a broken arm (it’s not easy, believe me!).. but I can’t imagine what it would be like with a bigger debt or a more severe medical emergency. I see lots of people in even worse trouble than I was in, both financially and medically. Please know that there are options for you when that GoFundMe doesn’t do enough. Even if your income is higher than mine, it’s worth a shot even for partial debt forgiveness.


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6 months ago

fifty questions for rook

(no spoilers!)

veilguard is finally here yall!!!!! and now a set of character building questions for rook, because i wanna know all about them! there will be more question lists as I play the game, but those will be marked with spoilers and under a readmore for the next sixty days

1. How old is Rook?

2. How did Rook get the nickname? What do they think of it?

3. What was Rook’s life before their faction?

4. Which faction did they join, and why? How long has it been?

5. What was life like for Rook before joining the Veilguard?

6. What was the reason that brought Rook to Minrathous?

7. Why does Rook agree to join the Veilguard?

8. What makes Rook a good leader?

9. What is Rook like on the battlefield?

10. Does Rook know their history? Do they know of the HoF, Hawke, the Inquisitor?

11. Does Rook keep up with current events? (How aware of the situation are they at the start of the game?)

12. Does Rook have any family? Do they keep in touch?

13. Did Rook bring any trinkets/sentimental items to The Lighthouse?

14. What does Rook see when they look in the mirror?

15. What’s the first thing people notice when Rook enters a room?

16. Got any tattoos? What’s the story behind them?

17. How’d Rook get those scars?

18. Their fondest childhood memory:

19. What is Rook’s love language? What love languages do they respond best to?

20. What’s it like to see them smile? Their laugh?

21. What does Rook’s voice sound like? One of the voice options available, or do they have a different accent/voicecast?

22. Most embarrassing memory as a teenager:

23. What does Rook wear in the off hours? Do they like dressing up?

24. Does Rook have any nightly rituals before bed?

25. How does Rook like to spend their free time?

26. Rook is in charge of the grocery list. What’s on it?

27. When was the last time they cried?

28. Does Rook have any pets/animal companions?

29. Any vices?

30. What is Rook’s class? Did they choose it?

31. What specialization does Rook pursue? What called them to it?

32. How would a desire demon tempt Rook?

33. What do fear demons look like to Rook?

34. How does Rook begin their day?

35. Ultimate comfort food meal:

36. What would Rook say are their flaws?

37. Does Rook ascribe to a faith?

38. Did Rook have any relationships before Veilguard?

39. What is their room at The Lighthouse like?

40. Describe Rook’s bed:

41. What’s on their nightstand?

42. Something Rook regrets:

43. Is Rook the type to gossip?

44. What is Rook really good at?

45. Who was Rook’s closest friend before joining the Veilguard?

46. What does it take to earn Rook’s trust?

47. What’s Rook’s temper like?

48. A color, flower, animal, and weather to describe Rook:

49. What will always make them laugh?

50. Are they a mystery, or an open book?

+1 What does Rook smell like?

4 months ago

growing up, my mum always told me, whenever i went to the doctors or any sort of health professional, that it was important that i told them that i was hypermobile. she'd done the tests with me (herself being hypermobile and disabled in large part because of it) and though she didn't know the details, she knew that hypermobility was important to have in my health record.

so it was to my great surprise and displeasure that, whenever i told doctors i was hypermobile, it was skipped over. never addressed, never touched on, not even a comment to belie what that meant for me. i myself didn't know the impact hypermobility could have on a person, but my mother had been insistent about that fact. it was important, so why did no one else seem to think so?

i grew up with kids in school who were on the extreme ends of hypermobility. i knew a boy in middle school who could put both feet behind his head. i knew a girl in high school with long, spindly fingers who showed me how far backwards her arm could bend.

both of them had health problems, which became more profound as they aged. i never knew the details, but it stuck out that they were hypermobile, and so was i, and with my own health declining there HAD to be a connection.

common knowledge gives the vague definition of hypermobility as extra stretchy muscles, of being double-jointed. it comes with warnings not to push your hypermobile body into the extremes. don't overextend, you will hurt yourself.

the warnings are warranted. the importance isn't overplayed. these things i knew, but i didn't know why. and without knowing why, they were warnings that i could never truly obey, despite how conservative i became with my movements in a vain attempt to protect what little ability i had left.

hypermobility is NOT stretchy muscles. muscles are supposed to stretch. in fact, it's important to their health (those conservative movements prolly hurt more than helped!). hypermobility affects connectives tissues, and lands under the umbrella of Ehlers-Danlos Sydromes (there are a few) which can range in severity from affecting skin and tendons to affecting blood vessels and organs.

severity is rare, and much easier to catch. this post is for the people who are "a little hypermobile" so that they can understand what makes their body different.

a muscle and its associated tendons are like a hammock. the muscle is the fabric you lie in, stretching to accomodate the load. tendons are the rope that attaches the fabric to the trees, providing a secure anchor for the muscle to operate.

so, what happens when the ropes on the hammock are also stretchy? well, you sit in the hammock and your ass hits the ground.

now imagine that the fabric of the hammock has the ability to clench like a muscle. a normal hammock doesn't need to work that hard to stop ass from meeting ground, because it has sturdy anchors. a hammock with stretchy rope, however, must exert several times more effort, because the more the muscle pulls, the more the tendons stretch.

in short, hypermobility forces your muscles to work harder, because they must first pass the threshold of stretch the tendons are capable of before it can actually do the task it's meant to do. the stretchier the tendons, the harder the muscle needs to clench, the easier it is to overwork.

this info reframed everything i was doing with my body. small tasks of strength required the effort of much larger tasks, and larger tasks ranged from extremely difficult to impossible. holding my arms up so i could work above my head required monumental effort. with an anatomical peculiarity of the feet, i needed to use several muscles in my calves and hips just to stand without losing balance.

so no fucking wonder i crashed and burned in my 20s, when everything i did took all of my strength to accomplish. no wonder i would contort myself out of shape, so flexible that i could anchor myself into extreme poses just to give my muscles a moment of relief, overstretching myself without ever realizing why, and what damage i could be doing.

so, some things to remember:

overextending isn't good for you, but it shouldn't be your biggest concern. instead, be aware of overexertion, both how LONG you are using a muscle without breaks and how HARD you are using it.

small, frequent breaks are your best friend if you need to do something for awhile.

when you take breaks, stretch the muscles you'd been using.

if you need to exert effort to maintain a pose (whether it's sitting, standing, etc) examine whether you need to be clenching those muscles, and why.

actually whenever you are using muscles, try to train yourself to use as few as possible. you can practice by sitting or standing, and relaxing as many muscles as you can before you tip over. finding a sense of balance can make your life so much easier.

become acquainted with what relaxed muscles feel like. chronic tension can distort your perception of this, and result in habitual tension.

so yeah. if you're hypermobile, that's important. don't let a doctor's dismissal make you think otherwise. take care of yourself and know what you are and aren't capable of.


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4 months ago
6 months ago

“my bonnie lies over the ocean, my bonnie lies over the sea,”

are we talking about the same body of water here, which is weird, or different bodies of water, which is even weirder

4 months ago

Hey

Hey Americans.

The federal government is about to get useless for at least a bit. This is a GREAT time to get involved in state level environmental orgs. That's where you're gonna be able to do the most for the next few years. Even a bit of casual volunteering can make a big difference.

I've done this off and on for years and when we go local we WIN. And friends winning feels good. This is how a lot of progressive agendas have won in this country. The whole US isn't out of this. People ARE still fighting climate change all around you.

You could be one of those people, in community with other people who are doing something.

doom and gloom "oooh everything is pointless oooh I'm so deep and edgy because I love trying to be the death of hope" people will just get blocked. I'm not talking to your crab-bucket ass.

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quandrixing - Quandrixing
Quandrixing

Just things I find interesting that don't belong in my main.

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