being disabled will really have you thinking/saying things like “yeah i’m not really THAT disabled. as long as i take my meds twice a day (and as needed), eat and drink exactly the right things, keep the perfect balance of being active and resting, the weather is stable, and nothing unexpected happens AT ALL… i’m totally FINE! i probably should not even call myself disabled at this point because i’m doing so well!”
if you don’t want to call yourself disabled, that’s fine and it is your choice! but if you’re only “fine” or “doing really well” when a bunch of different variables are all lined up perfectly, then maybe you are not fine actually. just a thought!
Being chronically ill is like
“It’s fine”
“It’s fine”
“It’s fine”
*complete mental breakdown because you can’t do this anymore*
“It’s fine”
journal of an ordinary grief, mahmoud darwish
My five year plan is to listen to music
Ada Limón, “To Be Made Whole”, On Being with Krista Tippett
i feel like disabled people are expected to tolerate and put up with things that able-bodied people aren't. (in my experience and from what i've witnessed).
disabled people shouldn't be expected to put up with ableism, rude comments, invasive questions, and just bad faith remarks in general.
we're people with boundaries and emotions, but firstly, we're people. we shouldn't be held to a different standard of what we should think is okay. we don't exist to educate or inform. we're allowed to not answer a question, even if you meant it well.
disabled people aren't mean for setting boundaries or having their caretakers/caregivers set boundaries for them if they are not able to set them themselves.
we're allowed to have privacy.
Hi everyone, I wanted to share some promising developments about a nasal COVID-19 vaccine:
"THIS IS HUGE! Researchers have developed a nasal COVID-19 vaccine that BLOCKS transmission of the virus. This suggests vaccines delivered directly to the nose or mouth could play a CRITICAL role in containing the spread of respiratory infections. Phase I clinical trials HAVE BEEN APPROVED!"
Link to said study:
Link to thread on Bluesky: /profile/sailorrooscout.bsky.social/post/3kyoj6hgihr2v