He Doesn't Have "the Brain Of A Two-year-old," He Has The Brain Of A Forty-year-old Man With IDD

Saw a post and it really got me thinking.

The post was talking about why don’t lower support needs, higher masking individuals even believe that higher support needs, low masking, “severely autistic” people, exist. And that got me really thinking. Because, I do think they know we exist. I just don’t think they want too.

I don’t think they want to know we exist. They know we exist, but keep us on the back burner. They live in ignorance bliss of us. I have what some people would think of as severe autism. Im nonverbal (although nonverbal later in life. But outside people don’t care about that. They see nonverbal as nonverbal), I’m intellectually disabled, need help in everyday life, etc. but I’m in the middle. I’m moderate support needs. To me, I’m not severely autistic. But to society, I am considered and seen as severely autistic because society doesn’t have the understanding of moderate autism yet. They don’t understand it. And I’ve seen more times than I can count that severe autism doesn’t exist. Not because they don’t believe in severe autism the label itself because it’s “harmful” but because they don’t believe that it’s just caused by autism. They often believe that’s it’s caused by comorbidities. Like ID, or cerebral palsy, or apraxia/dyspraxia, or mobility issues, or genetic conditions, and so on. Although none of this is bad.

They believe that autism itself can’t create severe autism. Which…isn’t true. Before, it was believed that severe autism was the only type of autism. That it was the only type that existed and if you weren’t severely autistic then you weren’t autistic. Then more research happened, then social media happened, and now..white, lower support needs, high masking, late diagnosed individuals are the majority of what’s being centered. And, that isn’t bad. We need awareness of all autism. But when one type of autism gets centered, it becomes a problem. It becomes the new norm. It becomes what everyone expects out of autism now. Which, isn’t true. Autism all of all types and traits exists. Autism of all support needs exists.

When people say severe autism doesn’t exist, they’re ignoring and saying that a BIG percentage of autistic people don’t exist. They’re saying that we aren’t real. That we aren’t on the internet, or in the communities they live in, or in their schools, or whatever. We’re everywhere. Severe autism is still a thing. It isn’t a misdiagnosis. It isn’t from comorbities, although if someone’s autism is more severe from comorbidities then that isn’t bad.

I think a lot of people need to be more aware of severe autism. And not just severe autism like me or my mutuals, or the people you see here on tumblr. But the ones with even MORE severe autism. The ones who live in group homes, residentials, institutions, and so on. The ones who aren’t on the internet. The ones who aren’t here blogging about their lives. We need to be aware of them too. We need to believe they exist, and believe that their autism is real.

Don’t erase severe or profound autism.

Friendly (or unfriendly if you're against this) reminder that this blog is supportive of ALL disorders. This blog does not think ANY disorder inherently makes someone a bad person, and is against any disorder being demonized. This blog wholeheartedly believes that a bad person having a disorder, yes, even if things that are also symptoms of their disorder are part of what caused harm, does not make the disorder a "bad" or "evil" disorder or excuse ableism and demonization directed towards the disorder.

Yes this includes personality disorders

Including npd and aspd

Yes this includes all psychotic disorders & disorders that cause psychotic symptoms

Yes this includes paraphilic disorders. All of them.

Yes this includes disorders that cause, or are even characterized by, attention seeking

Yes this includes disorders that directly have lying as a common symptom

Yes this includes dissociative disorders

Yes this includes any disorder with "gross" symptoms

Yes this includes physical disorders too

Yes this includes disorders that can cause loss of control of any kind- control of speech, control of body movement, etc.

Yes tis includes disorders that make someone "look scary"

This goes for literally any fucking disorder. There are not exceptions.

To my knowledge, my hair started turning grey when I was ten. But, from what I remember, I was super surprised to find a grey strand so it might have started sooner than that. My hair has also steadily been getting greyer since then.

// Shoutout to everyone with kleptomania. I also have it and I know how bad it can be. It gets better!

Don't tell me you're tired too!

I have ME (myalgic encephalomyelitis) also known as chronic fatigue syndrome. People seem to think that it's just that I'm a bit tired and i often get comments like "I'm tired too" or "i think I've got a bit of that".

I am NOT "just tired"

Most people fail to understand the differences between fatigue, chronic fatigue and chronic fatigue syndrome (ME), so I'll explain:

Fatigue is extreme tiredness caused by mental or physical exertion or illness.

Chronic fatigue is extreme fatigue that doesn't go away with rest and last for a long period of time usually due to a chronic illness. While not an illness in itself it is a symptom of many chronic illnesses.

Chronic fatigue syndrome (ME) is a chronic multisystemic neroimmune disease (meaning it affects a lot of stuff and lasts a long time). While chronic fatigue is the most well known symptom it is not the only one. ME/CFS can cause a wide variety of problems including but not limited to, sleeping issues, cognitive functions, muscle and joint pains, headaches and migraines, soar throat and glands, flu-like symptoms, dizziness and feeling sick, breathlessness, hypersensitivity and heart issues such as palpitations. ME/CFS can last anything between months, years, decades or even life. No matter how much you rest it doesn't go away. There is no cure and no effective treatment. It is NOT just tiredness!

I AM NOT JUST TIRED!

I have soul crushing chronic fatigue that you probably can't even imagine and it plagues every moment of my existence. I am in constant pain. My clothes hurt my skin, the light hurts to look at, the sounds make my migraines worse. It hurts to move, if i so much as breathe it feels like I'm being stabbed a thousand times. My brain no longer works correctly, i have brain fog all the time. I can't sleep no matter how badly i need it and when i do it's filled with nightmares and i wake up at 3 in the morning crying from the pain. Even if i had the best sleep of all time i would still wake up the same, more sick than i previously thought possible.

So I'll say it again,

I AM NOT JUST TIRED!

years later House is still as relevant as he ever was

*mom voice* You can get these words back when you know what they mean

i just wanna say, as a feeding tube haver, that it's so much more possible to get used to invasive medical devices than you might fear.

i grew up horrified by even being reminded organs exist. i was just so severely grossed out by human anatomy. i got a lot better about it through years of chronic illness, since you just have to get used to it. but that's the baseline i started from originally, in case you are also squeamish and wonder if it's possible for that to change.

so when i needed a feeding tube, i was pretty distressed by the idea. having a tube sticking through a new hole in my abdomen was a seriously horrifying concept, and i couldn't imagine coping with having a stoma (the hole) and caring for it etc. i did it because i needed it to survive but thought i might never get used to it.

and yeah, it freaked me out at first. but eventually i did just get used to it. it just feels normal now. i even feel affection towards it, because it is keeping me alive.

Me Giving a Pressed Conference: our advocacy for the disabled must include the addict, the imperfect victim, those we despise; the right to autonomy and life cannot devolve into a popularity contest

Reporter I Hate (Not Sexual Tension): Does that include all the attendees of the Bored Ape NFT event who went blind

Me: *Blood streaming from my nostrils and eyes* david, it includes everyone

Hi there! Can you give any advice on how to write someone becoming disabled through a traumatic injury? The Transition phase particularly, the emotional aspect and things to consider and pay attention to? I've been disabled since birth so my journey is completely different to the one my character will have. And while I went through transition phases too they were never going from being abled to disabled but from my condition worsening over the years. I've done research but I figured maybe you have a mod who'd be willing to share some thoughts on this? Thanks!

Hi, you might find this and this post by Mod Faelan useful! You can also check out our #acquired disability tag :-) (smile emoji)!

Mod Sasza