i was referred to as an epileptic by a doctor for the first time yesterday. even after having the tonic-clonic seizure in february and my eeg showing epileptiform discharges, the most my neurologist will say is that i *may* have a “tendency towards epileptic seizures”. he won’t say i have epilepsy. he had been blowing me off for a year, saying my focal seizures were probably “near syncope”, or a “weird migraine”. it’s finally gotten to the point where he can’t dispute my epilepsy anymore, but he still finds a way to phrase in such a way where he doesn’t have to admit he was negligent. i told my new rheumatologist about my history with seizures, and she looked over my eeg. she said i should be medicated for epilepsy. but my neurologist will not put me on medication until i have another tonic-clonic seizure, and unfortunately it’s not really her decision. i told her that my neurologist said that eeg’s can show epileptiform discharges in 1% of the non epileptic population. she laughed and said “you’re epileptic, sweetheart”. it was such a throw away statement for her, but it meant so much to me. this is one of the first times my seizures have been taken seriously. i think things r finally looking up
religious men: god’s purpose for women is to give men sexual pleasure and sons at men’s will
atheist men: the way we naturally evolved makes women’s purpose to give men sexual pleasure and sons at men’s will
I think about this a lot.
People only care that you are sick as long as you are going to get better. Once they find out it is a forever thing, their sympathy suddenly has an expiration date.