i love teachers that offer accommodations in class without me even asking for it
someone told me that they would end themselves if they had even half of my health issues... idk what to do with that information...
everytime i am out of a flare i convince myself i am usually dramatic and this won't impact my life in any significant way in the future... then the next flare is coming up and changes my mind real quick
i'm in too much pain to sleep and i have to get up in a few hours cause it's a busy day
i am lucky if i get to close my eyes for a few minutes and it sucks
just bonded with someone over the fact that both of our bodies seem to hate us
fighting the occasional urge to scream, because being chronically ill feels unfair and it really is all too much sometimes
making jokes about being chronically ill with my friends, because somehow things are a little less heavy when you laugh about it
i know i shouldn'r be but i am kinda scared to use my cane out in public alone... i just use it with someone i trust around
made the typical joke about "being allergic to gravity" today and i got an understanding nod instead of a "wtf"... now i'm the one that's confused
grateful for everything my life is besides the illness
grateful for everyone i get to have close to my heart
grateful for everything i get to experience
i refuse to let being sick stop me from being grateful for the rest
i can't get rid of this constant nausea ffs
the urge the give my dnd character a chronic illness cause i want representation
despite going to the doctor way too often there are still so many things wrong that i don't even know where to start
(the list of things i should probably get checked is loooong)
the concept of doctors is better than reality
playing a fun game of anxiety or new chronic illness symptom
some guy invited me to go clubbing with him and his friends... i tell him i would go, even though it's not something i usually do, but i couldn't drink because of the medication i'm taking/health issues
he looked at me and just went "oh maybe some other time then"
and my question is why? WHY am i required to drink to hang out with people? and if that's just a rule then there won't be some other time, because i got a chronic illness and not just a cold
should just start whacking peoples shins with my cane if they stare at me
i feel like i wasted all my healthy years with being sad
my mom told me she doesn't know what to do anymore with all the different health issues i got... which is like fair enough, but i wonder if she realizes how i feel and how draining it is to actually go to all the different doctors appointments
can't completely stand upright rn, but i'm still gonna try to function tomorrow (we'll see how that goes)
overdid it today... will suffer the consequences later
healthy people will never understand the amount of joy i feel when i come home dreading having to feed myself to then realize i still got leftovers
naptime does become mandatory again when you're chronically ill
i'm so tired of feeling sick all the time
i don't want to be miserable... i wanna worry about things that other people my age worry about and not how to manage doctor appointments... i want a doctor to actually help... i wanna feel okay and not be scared of dying
they CANCELLED the cardiologist appointment i was waiting for for OVER HALF A YEAR!
i was waiting for over an hour just to have someone come up to me to tell me they have to cancel and that i should call in 3 weeks to make a new appointment
the medical system is fucking bullshit and neglectful
casually having a low symptom day the day of a doctors appointment
gonna start answering "i hope you get better" with "thanks, i probably won't"
like i hope so too it's just not realistic rn
i wish stores would have more places to sit and rest for a little
like pleaseee i don't wanna pass out on your floor
i need people to understand that when i say i can't do something it means that i can't do something, it is not up for discussion
i just went climbing today which is something that will probably send me into a flare up, but omg it was so much fun...
i wish i could do things like that without consequences