The hope cannot be found
They need to have holistic chronic illness clinics. You can go to them while you’re in a flare. They have low sensory rooms with soft beds and low light tv’s. Have doctors to administer flare reducing meds/pain meds, but also have holistic professionals like massage therapists, acupuncturist, mindfulness workers, physical therapists, chiropractors etc etc.
Basically so that you’re entire body and mind can heal because the reality of this is mind and body health need to be aligned.
This is especially necessary because going to an ER for a flare can be so terrible and increase the intensity of the flare. It’s so bright and you have to wait for hours to be seen by doctors who let’s be honest don’t specialize in chronic illness, and are trying to jam in as many patients as they can because of being over capacity.
This is what healthcare would look like if it was designed by the sick.
I hate when I get told this. Especially by my own mother, who knows I’m sick. And has the same thing because fuck genetics sometimes right? So..Its like...I have a chronic disorder??? My own existence is an exhausting painful battle???? You should know this as well as anyone??? Smdh
Me, chronically ill: Gosh, I’m so exhausted.
Abled person: YOU’RE tired????? *I* worked all day!
dreamcast~*~*~*
What I say: I'm off to bed now, goodnight!
What I mean: I'm going to dissociate for a few hours until I drift into sleep, goodnight!
'No one gives a fuck about my nightmares, But it's nothing you should worry yourself about.'
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