In Recognition Of World Down Syndrome Day On March 21

Not me listening to The Little Mermaid soundtrack and crying about not feeling like a person anymore after my TBI

{ By Anna White from " Mended: Thoughts on Life, Love, and Leaps of Faith" }

being disabled with a chronic illness is like. I'll never go back to my old life. This is forever. I'm tired all the time, but all I do is sleep. I'm tired of being tired. I wanna work. I wanna go to school. going to the grocery store tires me out, and I'll pay for it tomorrow. I wanna change my life. this isn't ever going to get better. I'm just gonna be in physical therapy until I plateau. I feel better today I must be faking it. I'm feeling better today I'll use this energy to do some work. I am once again bedridden. My life will never be the same. This is something I'm going to have to deal with for the rest of my life. I guess it's hard to comprehend that.

I ain't wrong

I'm getting back to a level of chronically ill where I'm like "wow I am actually very seriously sick all the time and not able to manage and facing the possibility of an incredibly drastic surgery" and I really really don't like it. I'm just over here hurtling towards the point of no return, preparing to have a huge organ removed from my body but having to suffer with it for the next 5 months while I wait for referrals, and I'm just tired and scared and sick.

isn’t it weird how you can just grow up without a single person caring about you or looking out for you and with extra brutalizing on the side and you’re still alive and almost completely coherent but in so much pain and bursting with paranoia and insecurity and self doubt while all the people who did this to you are just. business as regular. where is the karma.

Since July is Disability Pride Month

(as opposed to every other month when we're all demure about disability rights /gentle sarcasm)

I wanted to highlight one of my favorite artists: Liberal Jane.

“why do you have a gap in your resume” idk why is there a gap in your staff. worry about that

I do not want to be sick. I am sick and want to be taken seriously. There's a difference.

abused kids daydreaming: but what if there was a situation where I got hurt... and someone cared and comforted me? what then??

abused kids: oh no I'm selfish and stupid for imagining this! How could I think my pain would matter enough for someone to comfort me, I need to get over myself and start living in the real life! Comfort doesn't exist and if I'm not tough I'm not going to make it!