For Everyone Who Needs A Little Reassurance And Hope.

Not my usual content, but I made something I wanted to share...

Edit: Now with an ID from @a-captions-blog! Thank you for writing it!

[Art description: A Pokémon-themed comic featuring OP as a Pikachu. Long description follows.

1. The tips of Pikachu’s ears are shown with text that says, ‘I’m a Pikachu / My world is filled with lots of cool stuff. Sometimes it feels like anything is possible!’ Under this is a collage showing a Charizard, a Pidgeotto, a Nidoking, an Eevee, and an Ivysaur, all in the background as the Pikachu looks up in wonder. Text reads, ‘All sorts of types, all sorts of attacks, all sorts of Pokemon.’

2. Text says, ‘But...only two ways a Pikachu’s tail could look.’ Two boxes in the upper corners show the male and female Pikachu tails, respectively. The male has a rectangular end to his tale, and the female has a heart-shaped end to hers. Text continues, ‘So then, what am I?’ A large drawing of the narrator Pikachu is shown, with an arrow pointing to their tail, whose end is split somewhat like scissors and doesn’t match either the male or female drawing above.

3. Text says, ‘Too pointy to be [female], too much of a V-shape to be [male]. I thought there was something wrong with me.’ Under this are three cascading panels showing the Pikachu from below at an angle emphasizing their tail. The second panel shows mel further away, and in the final panel she have disappeared entirely. Text on the panels reads, ‘I felt / very, very, very / alone.’

4. Text says, ‘But then, something happened. I found others like me.’ The art shows the narrator reaching out to another Pikachu. Under this are three other Pikachu. One has a rounded tail, one has a tail that has been stitched up to be rectangular, and one has a tail with a slight spike at the tip.

5. Closeups are shown of each of the tails from the previous panel, with text that says, ‘Round tails, scarred tails, spiky tails.’ Under this is a drawing of the Pikachu all hugging with lightning coming from their cheeks. Text reads, ‘They told me nothing was wrong with me, and I wasn´t alone anymore.’

6. Text says, ‘There are many ways a Pikachu’s tail can look. I’ve heard there’s at least over 30 different variations.’ Under this are two panels. The first panel shows the narrator lying on their back on a background of male and female symbols. Text reads, ‘Some days are still hard.’ In the second panel, the Pikachu with the scarred tail is shown with text that says, ‘My friend tells me her tail used to look just like mine. It was taken from her.’

8. The narrator is shown sitting and looking upwards. Text reads, ‘Some trainers won’t accept Pikachu that aren’t [male] or [female]. They alter our tails without our consent. But things are getting better. We are making change. We’re fighting so that our tails will be left alone.’ Under this is a panel showing the four Pikachu running happily towards the right. Text reads, ‘We’re all on a spectrum. Every tail looks different; anything is possible.’

The final text reads, ‘This is a comic about intersex people.’ The watermark in the lower right says @ PostManic. \End descriptions

when i was a kid i used to respond to the "glass half full/half empty" question by asking how the liquid in the glass got there in the first place. nobody ever gave me a chance to explain my reasoning so i'm doing it now

if you have a glass and it has some liquid in it, up to the halfway line, whether it is empty or full depends on what happened before the question was asked. if you started with a full glass and poured half out until only half remained, the glass is half empty, because if you continued pouring it would be fully empty. however, if you started with an empty glass and poured liquid from another container into the glass up to the halfway line, the glass is half full because if you continued pouring it would be all the way full. logical, no?

i was 13 years old when somebody finally told me it was supposed to be some kind of optimism/pessimism thing. i always thought it was a riddle that nobody let me solve

future archaeologists will know you were (not) a boy

I'd there anything that you'd like a prosthetic limb to be able to do? Like something that's not on the market but you could slip on to accomplish a task and then easily remove before it gets cumbersome?

I'm sorry i sat on this ask for so long, it's been very difficult to write an answer to this question that i feel is both honest and useful, but here's my best attempt at answering with what i consider to be an okayish amount of context...

I'm assuming you're asking because this post of mine blew up and got a lot of attention, and it looks like you're a maker that's keen on designing things to help disabled people and that's great! there are a lot of areas where products just don't exist but are of great help or need to people, and filling that gap is really really great! lots of people have lots of different needs, and many disabilities and situations can be helped with technological solutions, much of which need more development, both professionally and more grass roots.

but when it comes to my situation, ie upper limb amputee, i cannot stress enough: the problem is not prosthetic technology, the problem is other people, and ableism.

what i want people to focus on is that i can do almost everything i need to for myself without a prosthesis, using just my elbow, my nub (the soft squishy end of my residual limb), and a taking my time. a bit more awkward, a bit slower, more trips to the fridge and back, but i can do it. the things that i can't do myself, I'm lucky enough to have people to help me and happy to do so.

but what people actually focus on is prostheses, people love prostheses... so let's talk prostheses!

I have a myoelectric prosthetic "hand" - a big robot gripper that i can control with intentional nerve signals picked up via electrodes inside the socket that sits over my forearm; telling it to open and close on command, and controlling how fast it does so. the initial reason i wanted one was for soldering, because electronics is an on and off hobby i wanted to continue. I'm sure you know that through-hole soldering is at least a three handed job even for the regularly limbed, so i thought i needed it for that at least, and figured it would be handy (hah) to just wear all day for any task i might want two hands for.

well, in the four years of training and rehab and practice since... I'm fairly confident i don't actually need it for soldering, let alone anything else. my elbow grip and dexterity is good enough i can easily hold and aim a spool of solder without my prosthesis. i sometimes put it on to take out the trash, but that's just a time saver, it takes less trips and is faster than slinging bags over my nub arm. it has a little led flashlight in it that's useful at night outside sometimes? and as alluded to in the original post, it's got a small tip that can press little buttons that my nub can't, and that's the role i most often reach for it to fill.

but myo prostheses are a hassle to put on, often taking several attempts to get positioning right, it's hot and sweatty, there can be pressure sores, and it's real heavy in a way your shoulder never really gets used to. these are not really technological issues that need more research or smarts to solve, they're pretty fundamental limits of trying to attach any kind of medical devices to the human body. if i really had any big necessary use case for absolutely needing two hands, I'd go back to physical therapy and re-train to use a body powered prosthesis; the ones that secure with nice soft leather straps and use your opposing shoulder to control hook grip with tension wires. technology that hasn't changed in several centuries because we kinda already perfected it... it's low tech, reliable, has built in proportional control and feedback, and never features in science fiction because it's just not cool enough.

so why do i still bother? why keep my prosthesis, maintain it, have the socket padded so it keeps fitting, continue the slightly painful muscle control exercises instead of letting them atrophy and the damn robot hand sit on the shelf forever?

the problem is other people, and ableism.

when I leave the house in my natural body, nub on display for all to see (under an arm warmer because perpetually cold stump is a problem seemingly every amputee has to deal with)...

people stare. they notice me from a distance, no matter what i wear, how i carry my body. but it's not just staring. it's glaring, it's disgust, it's fear, it's dehumanisation. i have people recoil in horror, cross the street to avoid me, pull their children close to their bodies as if they might start dropping limbs if they get too close. people have stopped me in the street, from behind, demanding to know "what happened", I've had to get off trams at random stops to escape little old ladies insisting i disclose my highly traumatic medical history and that I'm being rude and uncooperative for not "educating" them on "such a fascinating curiosity"... or best yet, the one all my wheelchair using friends know inside out: forceful unwelcome "help" from strangers without even a hello, yet alone an ask. i once had a man leap to his feet and begin thrusting his hands towards my crotch because i wedged a water bottle between my thighs to unscrew the cap and he decided i was clearly incapable of doing it myself... and this isn't even getting into the ways that medical professionals treat me differently.

i go outside in my natural body, and I'm treated as a freak.

you know what happens when i go out wearing my prosthesis? children smile, adults mind their own goddamned business, leave me alone, and at absolute worst I've had a total of two people in four years talk to me about it, politely introducing themselves before saying "that's neat, how does it work?"...

because fiction and futurism have given people so many deeply ingrained fundamental ideas about prostheses and amputation that I am treated more like a human being while wearing a bulky robot claw with electrodes pressed into my skin, than when i dare to exist as i now naturally am.

this is also borne out by the hundreds of notes on my original post declaring we need to invest more, research more, design more, so that prosthetic technology is better and "works" and is cooler... and literally nobody asking why a piece of technology was designed in such a way that i needed to use my nose, needed to hold two buttons down simultaneously half a meter apart that are barely fingertip sized, when either of them being a toggle would work - a firmware fix that would take 30 seconds to implement if anyone actually thought about the real technological needs of limb different people, instead of scifi fantasies about improving prosthetic technology until its "indistinguishable from the human body", as if that goal should be self evidently desirable.

the actual technological solution to this situation, by the way, is a bracelet with a chopstick glued to it.

so.

*deep breath*

I'm sorry this was long and angry, I hope you can sense that my anger isn't directed at you, the question asker, but broadly at everyone and the way society perceives amputees/limb different people... and I hope anyone who reblogged my original post also shares this, because damn did tumblr miss the point of it!

to finish off, I'll give you the snippy snarky bitch response i originally had in consideration, before I decided to spend several hours on paragraphs of furiously slow one-thumbed attempt at shifting my audience's perception of prostheses... because legit it's great that you want to know how things can be improved for disabled people through technology! it's just that in this one particular case...

if you want to design some technology that would be most helpful to me but is totally absent from the current market, I'd like a portable pocket sized device that projects a psionic field to make ableds mind their own fucking business and just treat me like a human being when i go outside :3

A lot of leftist accounts are suspiciously quiet on the section 504 lawsuit, proposed medicaid cuts, and the "make America healthy again" executive order.

I know other leftists are not the enemy but if we don't have able bodied allies and general population support, there's no hope of pushing back against these ableist policies. These big accounts ignoring a massive minority at risk is scary. The current admin is the problem but there's no hope of a solution without allyship.

We need visibility. We need allies.

Not my usual content, but I made something I wanted to share...

Edit: Now with an ID from @a-captions-blog! Thank you for writing it!

[Art description: A Pokémon-themed comic featuring OP as a Pikachu. Long description follows.

1. The tips of Pikachu’s ears are shown with text that says, ‘I’m a Pikachu / My world is filled with lots of cool stuff. Sometimes it feels like anything is possible!’ Under this is a collage showing a Charizard, a Pidgeotto, a Nidoking, an Eevee, and an Ivysaur, all in the background as the Pikachu looks up in wonder. Text reads, ‘All sorts of types, all sorts of attacks, all sorts of Pokemon.’

2. Text says, ‘But...only two ways a Pikachu’s tail could look.’ Two boxes in the upper corners show the male and female Pikachu tails, respectively. The male has a rectangular end to his tale, and the female has a heart-shaped end to hers. Text continues, ‘So then, what am I?’ A large drawing of the narrator Pikachu is shown, with an arrow pointing to their tail, whose end is split somewhat like scissors and doesn’t match either the male or female drawing above.

3. Text says, ‘Too pointy to be [female], too much of a V-shape to be [male]. I thought there was something wrong with me.’ Under this are three cascading panels showing the Pikachu from below at an angle emphasizing their tail. The second panel shows mel further away, and in the final panel she have disappeared entirely. Text on the panels reads, ‘I felt / very, very, very / alone.’

4. Text says, ‘But then, something happened. I found others like me.’ The art shows the narrator reaching out to another Pikachu. Under this are three other Pikachu. One has a rounded tail, one has a tail that has been stitched up to be rectangular, and one has a tail with a slight spike at the tip.

5. Closeups are shown of each of the tails from the previous panel, with text that says, ‘Round tails, scarred tails, spiky tails.’ Under this is a drawing of the Pikachu all hugging with lightning coming from their cheeks. Text reads, ‘They told me nothing was wrong with me, and I wasn´t alone anymore.’

6. Text says, ‘There are many ways a Pikachu’s tail can look. I’ve heard there’s at least over 30 different variations.’ Under this are two panels. The first panel shows the narrator lying on their back on a background of male and female symbols. Text reads, ‘Some days are still hard.’ In the second panel, the Pikachu with the scarred tail is shown with text that says, ‘My friend tells me her tail used to look just like mine. It was taken from her.’

8. The narrator is shown sitting and looking upwards. Text reads, ‘Some trainers won’t accept Pikachu that aren’t [male] or [female]. They alter our tails without our consent. But things are getting better. We are making change. We’re fighting so that our tails will be left alone.’ Under this is a panel showing the four Pikachu running happily towards the right. Text reads, ‘We’re all on a spectrum. Every tail looks different; anything is possible.’

The final text reads, ‘This is a comic about intersex people.’ The watermark in the lower right says @ PostManic. \End descriptions

I want you to remember:

The fascists hate you too and they just will pretend otherwise until after they've killed the rest of us, before they turn on you.

cant stop thinking about this video

Hello,

How are you? I am Anas from Gaza. Due to the terrible situation, war, bombings, and the dire living conditions, could you please help us by donating through the GoFundMe link, even if it's just a small amount? And if you can't, could you please share the link?😔😣💔

GoFundMe link: https://www.gofundme.com/f/restoring-hope-for-my-family-and-gazas-struggling-communit

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