little known kleptomania fact: it causes multiple other non-theft related fears and symptoms. like people being behind you, talking to store employees regardless of whether you're doing anything or not, agoraphobia, fear of security regardless of whether you have anything or not, even in recovery. even when you're months, years clean. hypervigilance and paranoia, delusions, other psychosis symptoms. it's genuinely an extremely difficult mental illness to deal with.
So, I have a morbid curiosity issue but also OCD and anxiety, so sometimes, when I fall down a rabbit hole of something just a bit too creepy (especially when it comes with creepy pictures, like this schoolboy9 thing,) I find myself irrationally afraid of stupid things. Like twenty-ish minutes ago, I was afraid of seeing that schoolboy9 guy in my closet if I got up to go to the bathroom. I knew it was irrational, but I was too scared of that to get up. So here's a solution that worked for me;
Reaction content for kids under twelve.
Seriously. Azzyland, Kyutie, and Reaction Time, Azzyland and Reaction time slightly more but Kyutie does have some more adult-geared content if you'd prefer that. I just watch a couple videos and boom, I'm feeling better and I can get up and do what I need to do. I recommend it.
(Also, those merging games! I know there's a trick with Tetris, where if you see something scary you can play Tetris for a while and it helps you forget whatever than thing was, but I've never been good at Tetris. But merge gemstones games, like Candy Crush or, my favourite, Enchanted Kingdom; Eliza's Adventure, those help me take my mind off of whatever I saw. Plus they're easier.)
”autistic people don’t do [ extremely common higher support need , higher level autistic trait / symptom ] , that just stereotype”
you need include us too : you need include childish autistic person , you need include nonverbal autistic person , you need include autistic person who drool , you need include autistic people with intellectual disability , you need include autistic person with loud messy public meltdowns .
can not hide behind “it just stereotype” because that not true . there are many people very disabled by autism , you need remember us and include us .
it’s literally his house
how does he get in and out of his own house
Able bodied parents I'm begging you to teach your kids about disabled people. Not just because they could become disabled themselves one day but also because even if they don't, they have a very real chance of being rude to us if you don't teach them.
Yes, kids just say shit. They have no filter. That doesn't make it any less humiliating when your child sits near me on the bus and incessantly grills me on why I have a stick when I'm not old. Or laughs at us for things our disability causes. It doesn't take away the hurt when they bully a disabled classmate. For a large part these things could be avoided if you just taught your kids to respect us. It's really not that hard.
this is going to be a long post, it's kinda just me writing all my raw unfiltered thoughts on ABA therapy as someone who actually went through it
-> TW for ABA therapy, child abuse, suicide <-
I was functionally diagnosed with autism at the age of 3 but it wasn't until I was 13 that I was actually formally evaluated for it and given an official diagnosis. I was behind in social skills and developmental skills
[ID: "was also described as a sensory seeker. She does not currently have any friends and has struggled to make and maintain peer relationships throughout her childhood. Difficulties with social skills were initially noted when she was in preschool (years before the onset of clinically significant symptoms of anxiety and"]
[ID: "Social functions: [blank]'s mother also completed a questionnaire rating her social responsiveness. Her responses on the SRS-2 indicated that [blank] is demonstrating severe deficits in the areas of Social Communication (reciprocal social interaction and nonverbal and verbal communication), Social Motivation (motivation to engage in social-interpersonal behavior) and Social Awareness (perceiving social cues) and moderate deficits in the areas of Social Cognition (understanding social cues). Severe Repetitive and Restrictive Behaviors (stereotypical behaviors or highly restricted interests) were also reported. The total T-score on the SRS-2 indicates severe deficiencies in reciprocal behavior that are likely to result in interference in everyday social interaction"]
[ID: "%ile) are mildly impaired, while her social skills are moderately impaired (2nd %ile). By domain, demonstrates mildly to moderately impaired abilities in six adaptive skills areas, including self care (9th %ile), communication (5th %ile), home living (5th %ile), self-direction (2nd %ile), social (2nd %ile), and leisure (1st %ile)"]
and ultimately all this ended up with the number one recommendation after my autism evaluation being for ABA therapy.
[ID: "Recommendations: Based on the above results, the following recommendations are made for [blank] and her family.
1. ABA therapy: [blank] May benefit from an intensive treatment program to foster cognitive and communication skills, improve independence and adaptive functioning, and help manage interfering behaviors (i.e home-based, 1:1 instruction, task analysis, etc.) Most private and community programs are based on principals of operant conditioning and taught in home with 1:1 instruction"]
*I'm getting misgendered here. my pronouns are he/him
"operant conditioning"-- like a dog 🐕🐕. woof woof.
my mom didn't know any better so she put me in ABA therapy with the Center for Autism and Related Disorders. she regrets this. I regret this more.
my autism evaluation was cruel, it dissected all my flaws as if I was a bug under a microscope in a highschool laboratory. my evaluation was passed around to ABA therapists, a line of high schoolers peering through the microscope examining the most vulnerable parts of me.
and I choose the highschool analogy quite deliberately. most of the ABA therapists at my center were recent highschool graduates with no degree and little training. they knew nothing about autism and had no qualifications. you need more certificates to become a professional dog trainer than to become a professional human trainer.
"operant conditioning"
and I wish I could say it was just a poor choice of words but ABA therapy was dog training for children. my dad used to call me an "it" and somehow I felt less dehumanized by that than the entire experience I had in ABA therapy.
I was the oldest person at my center (I did not receive in home therapy) with the next oldest being approximately 3 years younger than me. at the time I felt babied. I was surrounded by 5 year olds and I was treated as if I was not just a 5 year old but an autistic 5 year old and anyone who has been a visibly autistic 5 year old knows what that feels like. I had escaped being an autistic child and now I was being treated like one again. The head of the program tried to console me by telling me adults received their services too.
[ID: "Following the principles of applied behavior analysis, CARD has developed a treatment approach for children and adolescents with"]
this was the first lie they told me. CARD does not work with adults.
I was not allowed the privileges of being a 13 year old. because I was an autistic 13 year old and therefore I was the equivalent of a 5 year old. I was in psychotherapy at the same time and I had grown very accustomed to some level of freedom in therapy. I was allowed to use the bathroom independently. in ABA therapy I was not allowed to use the bathroom independently. I tried once, me and my therapist were on an "outing" to the grocery store and I told my therapist I was going to the bathroom and walked off and I got a very stern talking to about how I needed to "stop eloping" and if I didn't stop it would "become a behavior"
eloping became a common theme used to control me and squeeze money out of my parents.
out of everything I hated in my life, including severe physical abuse at home (which they did not report), I hated ABA therapy the most. I would repeatedly make serious threats of suicide to try to get out of ABA. no one cared. everyone thought I was being dramatic but there were times I wrote out suicide notes and ABA was among the reasons I listed. ABA made me feel hopeless, depressed, revolting, disgusting, inferior, and less than human. between ABA, my home life, and my social life I had never felt so hated and it was boiling through my skin. I acted out, I was bullying people, I was behaving recklessly, I was starting fights, and all this only made the oppressive force of ABA crack down on me harder. I was a cat hissing in the corner begging to be left alone and ABA brought a net to try to tame me further. every time I scratched back it was listed as a reason I needed to be there.
I was "disruptive" and "rebellious" and "uncooperative" and "resistant to treatment" and no one could figure out why I was "regressing" despite me shouting the answer. I was screaming and no one was willing to hear me
I hated myself and my autism. my autism diagnosis made me want to die. I didn't feel freed by it or understood I felt ashamed and disgusted. I felt incompetent and like I had failed. I was ashamed to be at ABA, it was my biggest secret. I'd lie to my friends about why I couldn't hang out and I'd lie to people in public about who the woman I was with was and I'd lie about all of it to try to cover up my most shameful secret.
ABA therapy did nothing but foster this. In ABA therapy I was mocked for being autistic and what was happening only clicked when a young kid, maybe only 4 or 5, was flapping his hands and a therapist took out her phone and recorded him. we were circus animals. it was all an entertaining show to them while they poked and prodded at us with metaphorical hot irons to make us dance. the first time a therapist laughed at me for rocking back and forth I wanted to throw up. I almost did. it was systematic bullying of children I was forced to watch and experience.
my point is: the last place on earth I wanted to be was the ABA center.
so of course I tried to leave. my mom would bring me McDonald's and I'd beg, sobbing real tears, to leave early because only she could sign me out. every time I'd go to meet her I'd be marked as "eloping" and my hotel stay in hell would get extended.
my natural response to a stressful environment (leaving) was pathologized. I was eloping this way and that way and never once did I actually, truly elope. that word was a weapon used against me. they used my "elopement" to justify extending my stay to my parents. they ate it right up.
they argued I needed to stay there because I was making friends. this was true, I'm great at getting along with children it's part of why I want to go into pediatrics, but I had also made real friends with people my age at my highschool. ABA was getting in the way. I wanted to spend time with my friends outside of school but ABA took up all my time from the minute I left school to 6pm and all day on weekends. I was doing a full time job's worth of hours. I complained about how I was missing out on spending time with my real friends (as in, over the age of 7) and I was met with almost no wiggle room in my schedule. I was allowed to pre-plan time to spend with friends but every time my friend group wanted to do something spontaneously? I had to say no, and I had to lie about why. my friends would share stories about driving around town with 2 people in the group stuffed in the trunk, of hanging out in the woods together, of taking part in ordinary highschool activities as ordinary high schoolers and it made me cry because I was not an ordinary highschooler and I was not allowed to participate in ordinary highschool activities. I was one of those weird, unpleasant, socially awkward autistic people instead. eventually, they just stopped inviting me. I was forced into the out group by ABA.
I'll never get that back. I'll never get a chance to be a normal highschooler ever again.
when I did have time available to hang out with people I never had the energy to. at the time I was living with an undiagnosed physical disability and I was begging to see a doctor but no one would believe that it wasn't just anxiety. the people who believed me least of all were the people at the center.
I was constantly told I was trying to get out of therapy by "feigning" very real pain and fatigue. I tried to explain spoon theory, and that I had limited spoons, and in response they made a task for me to name things to "regenerate spoons" that's not how it works. I wasn't the only physically disabled person there. there was a wheelchair user who was constantly forced to stand for periods of time despite being in agony doing it. he wasn't allowed rewards until he did it.
rewards were used to train us like dog treats are used with dogs. sometimes the treats were fun! I'd get to cook, play Mario kart, and go on outings. other times the treats were "using the correct name and pronouns for me." I'd constantly be threatened with deadnaming and misgendering if I was being "noncompliant."
misgendering because of my autism was a theme in my life. my neuropsych evaluation report misgendered me. my parents misgendered me. the staff at ABA misgendered me. at one point the head of the program suggested that my "gender confusion" was because of my autism. my abusive father latched onto this and still claims that the reason I'm "confused" about my gender is because the evil transgenders tricked me into thinking I'm one of them because I'm autistic and therefore easily impressionable.
the two therapists I had were nice because I refused to work with the others. they weren't on a power trip and both eventually left because they realized the harm the organization was doing. other therapists were not so kind. other therapists were on a power trip, because in their mind lording over autistic 5 year olds (and autistic 14 year olds) makes them powerful and strong. occasionally I'd get stuck with one of the other therapists when my usual therapists were out. they would talk to me in a baby voice. they would make fun of me for rocking back and forth, for not making eye contact, for talking about Skyrim "too much" and generally just for being autistic.
I never really knew what I was supposed to be doing, just that I was doing it wrong. the therapists there rarely actually told me what my tasks were they'd just mark yes or no on them, judging me for something I wasn't aware of. I was never actually supposed to graduate, I was never supposed to get out, if they wanted me to succeed they would have taught and explained what was happening but I was intentionally left in the dark.
I continued threatening suicide to get out. no one took me seriously. I was seriously considering it. there's no happy conclusion where someone finally realized it was all wrong, or I figured out how to be allistic and graduated, or I felt more comfortable there. I only got out when covid struck and shut the center down. it's gone now, replaced by a family advice center. I hope their advice for autistic children is to never put them in ABA.
there is no grander message here just suffering. I'm sorry if you were expecting some sort of great point at the end of this. there's not one. it happened, I wish it didn't, and I hope no one else experiences what I did ever again.
okay to reblog
I see you disabled people who don't know your family medical history because your family members couldn't/wouldn't/weren't allowed to go to the doctor and never got diagnosed, or don't know your family.
I see you disabled people who didn't know you were disabled growing up, physically or mentally, maybe because your parents didn't have insurance and couldn't afford it/wouldn't take you seriously/didn't think it was a problem because they had it/doctors couldn't figure it out.
I see you disabled people who have bouts of an issue that you grew up with, that are/were infrequent enough that you never really thought about it and dealt with it on your own, and when you have one in front of people who weren't medically neglected, you wonder why they look so horrified as you describe it.
I see you disabled people who didn't/haven't had any amount of care or accommodation for their disability since it started, because you couldn't get diagnosed.
I see you disabled people who grew up thinking everyone had the same problem as you and that it was normal and so you accepted it, because you didn't understand how the human body worked and had no real frame of reference nor the language to ask for help, or the people around you saw it and just ignored it.
I see you disabled people only now understanding that what you experience is abnormal, and that there are things that can be done to help it, make it easier, or at least help you understand yourself better.
I see you disabled people that will never be able to get diagnosed or get the help you need, whether from being poor, lacking insurance, or any number of reasons.
This shit is hard, and there are people who will never quite understand your struggles. It doesn't seem to get talked about as much, but I wish it was. Please know I love you, and you aren't alone.
Most people really don't seem to know what this mysterious "residential care" means when it comes to disabilities.
"This person is severely disabled, they have to live in residential care."
Do you know what happens when a severely disabled person with high support needs who isn't aware of dangers and needs constant supervision applies for residential care?
They get turned down or kicked out a couple of days later.
This happens regularly, btw. Kids grow up and parents think "Oh, residential care sounds good", and then suddenly every institution, etc. goes "Sorry, we don't specialise in that, sorry, your child is too aggressive, sorry, your child can't stick to our sleep schedule, sorry, your child is too noise sensitive, sorry, your child HAS to participate in our weekly activities even though their disability makes it impossible for them to do so, sorry..."
People who can live in residential care aren't your "the worst of the worst" example. There is such a thing as "too disabled for residential care" and it's more common than you'd think! ☝🏼
"But what happens when someone is too disabled for residential care and their family can't take care of them? Surely everyone eventually ends up somewhere!"
They get passed around from institution to institution, but everyone eventually goes "Sorry, we can't keep them here", and it won't stop. Until, maybe, one day they're lucky and a fixed team of carers "adopts" them and tries to create some kind of assisted living from scratch.
Nobody talks about it, which is why it's always a big shock for parents who found a really good residential care place for their soon-to-be adult child and their child looks forward to moving out, and suddenly this wonderful residential care company turns their child down because it's too disabled. And then the next one. And the next.
So no, residential care isn't for "those with the most profound disabilities" - people with the most profound disabilities can't be in residential care at all.
[Plain text: I love the Young Justice Barbara Gordon.]
(Keep in mind that I am not paraplegic, just a nerd)
I was never the biggest fan of the original Killing Joke storyline (and I will fight people on this,) but I think Young Justice managed to turn it into a plot that wasn't actually bad. In fact, they did a lot of things really well.
The original storyline, The Killing Joke, gave Barbara Gordon waist-down paralysis after the Joker shot her. The problem with that is that he shot her in the stomach at an extremely close range, the muzzle of the gun literally pressed to the middle of her stomach. At that close a range, depending on the gun and bullet, he probably shattered half of her spinal cord, if not more. The thing about shatter injuries to the spinal cord is that they cause more complications in upper-body mobility than other spinal injuries. If a significant portion of her spinal cord was shattered, Barbara wouldn't be as good as she is at fighting. The damage would cause problems in the rest of her body. And then, of course, everyone is grieving for her and so sad that she'll never walk again and have to retire and I'm pretty sure Batman does something drastic? And that's... really not a plot non-disabled writers should go for.
However, in Young Justice, it's completely different. Barbara saw Cassandra Cain, who was unidentifiable but very small so obviously a young child, going after Joker with a sword, so she chose to get between the child and her target to prevent Cass from doing something that could never be taken back. She took the slash, which hit her lower back, just above her tailbone, so that it didn't go to Joker's neck. And the other characters handled it well. Nightwing was a bit panicked, of course, but that's because Barabara had a severe injury that was life-threatening. Batman, knowing that Nightwing had called for a medical evacuation and that he was handling first aid, took the sword from a terrified Cassandra ever so gently, and put a comforting hand on her shoulder. Cassandra was horrified, of course, but it was because she'd just hurt someone who wasn't her target severely, not because Barbara was now disabled. And then Barbara tells her that she didn't do it to save Joker, she did it to save Cass. And Cass is horrified and probably hates herself in the moment, sure, but that memory later becomes something that strengthens her. Cass gets kidnapped in that episode and remembering that during her captivity helps her. It's a memory of the woman who would later become her older sister and one of her best friends. She knows that Barbara, the woman who has done so much for her, will help her. She won't rest until Cassandra is safe, even if it means coming after her herself.
I also really like how the plot handled this. Number one, we don't know off the bat why Barb is paralyzed, it doesn't come up until it's relevant, she's just paralyzed. And when it does come up, it's not a tragedy, it's Barbara risking her life to save the soul of a child who didn't understand the moral consequences of what she was about to do. She chose to do that and she would do it again. That's a really interesting way of subverting the exhausted "disabled by an accident" trope, because yes, it was an accident on Cass's part, but Barbara knew she was probably going to get badly hurt. It's similar to a character running into a burning building to save someone else. They accept the potential consequences because they couldn't live with themselves if they didn't help. She took the risk, she knew what could happen, which is so much better than her having no choice and being shot. It's far less tired an idea and a very interesting spin that I quite like.
Going back to the injury, let's get in-depth about that. I mentioned how a shatter would impact her upper body, too. But the way she was injured in Young Justice, which was probably severing the connection between two very low vertebrae or possibly cutting a vertebra itself if Cass put enough force behind it, makes sense. It wouldn't have as much a major impact on her upper body, so it makes sense that she can throw the person who snuck up on her like it's easy. Barbara can be an excellent hand-to-hand fighter and it's not unexplainable. We don't see her exercising in her chair, likely because she has the wrong chair for both exercising and her disability (she has a hospital-type wheelchair instead of a lightweight chair, which is, I think, just poor research,) but she clearly still does because she's still extremely good.
Also, I like how there's no cure plot. The show might still be ongoing so I don't know if that'll last, but for now, she hasn't been cured and shows no desire to be. The comics would occasionally have her paralysis cured and thank the gods they didn't go with that, even with a character (we won't get into the absolute disaster of Violet Harper here) who could, in theory, heal her, and I love that. For some reason writers are afraid of keeping their disabled characters disabled, so I'm surprised and glad they didn't take the easy out.
Finally, I love that Oracle is still able to do field work with special equipment. Does she go onto the actual field herself? No, not really. But she uses small drones and other things to help out, such as the tiny drone that gave Cass a lock pick or her hacking into systems to protect her allies from security measures. Babs doesn't need to stop being a superhero because she's disabled but also doesn't suddenly use a mech or something, she just finds ways to work with her new circumstances to keep doing what she wants to do, just in a different way. She's still a massive threat to her enemies, just in a different way, utilizing talents she already had (Barbara is extremely intelligent and very creative) to continue to help people.
TL;DR, I really, really like how Young Justice handled Barbara Gordon. If we must have more characters disabled in accidents, this is a very good way to do that.
poke hornet nest
(my stance on ABA)
as someone with (some) lived experience
most of it is shit.
for long time in past and even now, ABA only service available for a lot autistic people & family.
most of it (< ABA*) still is shit. (*this disclaimer applies to rest of repetition)
heard of more than enough cases of. insurance/school system/etc give pathetic number of hours/sessions for speech, OT, etc for autism but many more hours of ABA. or only cover ABA.
most of it still shit.
some speech & OT & other so called “alternatives to ABA” use behavioral & ABA tactics.
most of it still shit.
for many family, especially those with autistic person diagnosed as “severe” or level 3 and or have extreme behavioral issues etc. their option isn’t “ABA or no ABA.” often, option is “ABA or be labeled as abusive neglectful by government” or “ABA or have child taken away” “you ‘willingly’ enroll in ABA or we take and put them in ABA anyway” or “ABA or lose job.”
most of it still shit.
“ABA or lose job” because school not able or not willing help (because autistic person’s needs “that much”), you keep getting called to pick them up from school, from day care. other people not know how “deal with” your autistic family member, you know how help them a little more but also you sure as hell don’t and are just as lost. so you keep miss work to go pick them up from places that kick them out and you exhausted and you not get sleep because autistic family member needs pretty constant supervision and you not have respite and you not know how help and eventually your job fires you because you keep miss work. and oh did ever mention caring for disabled person extremely expensive? but oh btw there ABA agency you can send autistic family member to for up to 40 hour/week so maybe you can keep job and thus keep roof over head and can still put food on table for family for your autistic family member. oh they also say they may able help with autistic family member behavior so maybe they don’t get kicked out of every necessary service.
most of it still shit.
ABA agencies frequently kick out people deemed too severe or “cannot be helped” or too violent or too many behavioral issues or cause too much harm.
most of it still shit.
in world where may & very often do kill you for seeing you as different thus “threat,” ability mask life saving survival tactic. am talking about POC. am specifically especially talking about Black people. is teaching how mask greater evil than dead killed hatecrimed? sure, no one should have to choose between these two options, but world not care about your morals n your “should”s n your envisioned better future you may or may not be actively help build right now, these people need survive in real world here and now.
most of it still shit.
there (some. a few.) ABA survivors who went thru ABA in past and now who think ABA helped. helped them gain skill. help them prevent harm. some of them don’t see self as abused in ABA or traumatized by ABA. some see it as both abused and helped and grateful for help and hate abuse. some see as both abused and helped and don’t see amount of helped as ever worth abuse.
most of it still shit. (so many were & are abused. n abuse is abuse)
many newer ABA agencies realize ABA heavily criticized n labeled abusive & say they change methods & no longer practice old school ABA & now no longer abusive.
most of it still shit. (many of these agencies still do coercive abusive stuff even if call themselves changed)
some of them maybe truly changed. getting rid of abusive practices, focusing on skill building & adaptive functioning, child-led, instead of drills and forced masking.
most of it still shit.
talk a lot with people who so adamant about “all ABA abuse” “all parents who put child into ABA abused deserve get child taken away” who never was in personal proximity of ABA who. when ask to describe what ABA is in own words, not able to. or give generic response like “abuse & force mask”, but when ask to describe specific methods they do that, not able to. when ask them what discrete trial training and prompting is and what goals may look like and how they write behavioral analysis, never heard of any of them. say listen to ABA survivors, but not able name any individual names. just “oh listen to them online, if you actually listen like me you would know & i wouldn’t need say more so it really your ignorance.” but more often, just get reactionary shut down whole conversation be seen as ableist threat if even be asked first question. how you help advocate for ABA survivors if don’t even know what ABA is? or who ABA survivors? if cannot even talk about ABA? how even fight against your enemy if don’t even know what enemy look like, not able pick out enemy from crowd unless spoon fed?
most of it still shit.
found that. when am talking about ABA. from add nuance to encourage thought provoking questions to even rhetorically ask people to describe ABA. have to repeat emphasize that am not saying ABA all not abusive. even if it first thing i lead with. even if it super clear that am indeed criticizing ABA, just with more grey area and nuances than people used to. lot people will block me from this post just within some paragraphs. lot will block me over saying “most of it still shit” instead of denounce all ABA, when it clear that use of word “most” is deliberate choice n reason of said choice is in every corner of this post. others will finish reading (if even that) and all get out of is repeating “most of it still shit.” made similar posts year(s) ago. and still, find people vague post or explicitly post about me or my post, paint me as evil ABA apologist. whenever come across people who talk about “post where talk about ABA good,” stop and wonder, are they talking about me?
don’t want to talk about ABA because of this. tired, not worth it, often is bad starting point is turn off for people who never seen my posts when have other posts much easier entry point, n start off at bad start may cause them to not listen to me and maybe even other higher support needs and or nonverbal nonspeaking autistics in foreseeable future or ever.
you know, this post started off as “… so you all know i don’t think kindly of ABA right”
throughout write this post, don’t know which part am emphasizing more. the “most of it still shit” part or parts in between.
still. most of it still shit.
Raven, he/him, 20, multiple disabled (see pinned for more details.) This is my disability advocacy blog
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