Most people really don't seem to know what this mysterious "residential care" means when it comes to disabilities.
"This person is severely disabled, they have to live in residential care."
Do you know what happens when a severely disabled person with high support needs who isn't aware of dangers and needs constant supervision applies for residential care?
They get turned down or kicked out a couple of days later.
This happens regularly, btw. Kids grow up and parents think "Oh, residential care sounds good", and then suddenly every institution, etc. goes "Sorry, we don't specialise in that, sorry, your child is too aggressive, sorry, your child can't stick to our sleep schedule, sorry, your child is too noise sensitive, sorry, your child HAS to participate in our weekly activities even though their disability makes it impossible for them to do so, sorry..."
People who can live in residential care aren't your "the worst of the worst" example. There is such a thing as "too disabled for residential care" and it's more common than you'd think! ☝🏼
"But what happens when someone is too disabled for residential care and their family can't take care of them? Surely everyone eventually ends up somewhere!"
They get passed around from institution to institution, but everyone eventually goes "Sorry, we can't keep them here", and it won't stop. Until, maybe, one day they're lucky and a fixed team of carers "adopts" them and tries to create some kind of assisted living from scratch.
Nobody talks about it, which is why it's always a big shock for parents who found a really good residential care place for their soon-to-be adult child and their child looks forward to moving out, and suddenly this wonderful residential care company turns their child down because it's too disabled. And then the next one. And the next.
So no, residential care isn't for "those with the most profound disabilities" - people with the most profound disabilities can't be in residential care at all.
I love people with npd so much. I’m sorry that world is so ableist. I’m sorry that you can’t be anywhere without hearing the word ‘narcissism’ or ‘npd’ used in a negative light. I’m sorry that there isn’t anywhere near enough support.
I’m so sorry that you can’t win. It must be so suffocating and aggravating, living in a world where it feels like everybody hates you. You deserve better.
i want you all to know that there is an artist (carmen papalia) who, after he started using a white cane, assembled a 12 foot long white cane and began using it in downtown vancouver. the length of the cane made it functionally useless as a device and the only purpose it served was making him an obstacle for sighted people. dare i say… 2019 goals
Everything coming out about Dream right now and the people defending it simply because “he’s autistic uwu” just reaffirms to me something that I’ve known since childhood— autistic men will always be coddled while autistic women are belittled.
It’s not only infantilizing to people with autism, but offensive. Being neurodivergent is never an excuse for having a fundamentally insane predisposition and worldview, and exploiting and hurting other people. I can’t believe I have to say this!
a way you can help some i/dd and cognitively disabled people is by clarifying what kind of response you want if you're not open to any kind of response
like, specifying that you want comfort or advice or solidarity or some other kind of acknowledgement, or if you want just an emoji or to change the subject, or if you want to close the conversation, like
just fucking communicate. give us feedback. tell us what you want
if you need clarification ask for it. if you need us to rephrase ask for it
we're communicating or verbalizing the only way we know how. and if you're not like this you can't even begin to scrape the fucking surface of understanding how hard it is
When someone is disabled, neurodiverse, etc people can sometimes ask really ignorant, invasive, or invalidating questions that take emotional labor to answer. And sometimes there is a lot of pressure to answer. This is even worse if it is a joke instead, and the options are to ignore it or say something and risk being yelled at because “it was just a joke, gosh.” Confronting people and setting boundaries gets you called over-sensitive, over-reacting, childish, etc.
Let’s Talk About Questions.
I first want to say, I started this blog because I wanted to. You are more free to ask me questions than random blind people on the street. The questions I receive here are also good, researched questions where I can tell someone has read my blog or some articles. I’m not posting to give my followers or anyone else anxiety. The whole point is that these people don’t have an interest in learning, doing any of their own work, or challenging their false beliefs. They want me to endure them and confirm them. I haven’t had to do that here and if I did, it would be easier than in real life because I can choose not to answer a question by deleting it. My followers are also already respectful of and educated on blind people, and so if I have a response that is less than perfectly polite, readers will know why. That is not true outside of this blog.
Now let’s talk about questions and why they can be used in a bad way. What makes a question bad? What is the difference between a genuine and ignorant question? What if you don’t have time to research?
A Bad question here is one that is based on a usually false assumption that prompts a desired answer. An example would be, “Are you really sad that you can’t read?” or “Why would a blind person need a phone when they can’t use it?”
I see a lot of these on tumblr. For example, one blog I followed received an ask that basically said blind people couldn’t be in the orchestra because such and such limitation. These questions have, at best, an obvious assumption along with, at times, a confrontational tone. This person does not want education. They want to defend their belief. A better way to truly ask such a question would be something such as, “I read that people in orchestras and choir have to sight read music. How do blind people navigate this?” No assumption is made about a blind person’s ability. The question is asked in an open manner. The asker has done some research.
Now, in real life, people don’t always preface it with how much research they have done. And let’s be real, it usually isn’t much. But someone asking, “Do you prefer Braille or do you use a computer to read?” shows at least some knowledge. They aren’t trying to put me into a box or use me for confirmation bias. It isn’t so much about getting the perfect wording. It’s about not expecting the blind person to confirm something for you, argue with you, or educate you without you putting in any effort. Even “I was wondering how you do assignments,” is open and allows for my response. If you aren’t able to research in the moment, make your question open or be transparent. To be honest, I feel better about people not doing research in person than online, because being online usually shows you have some time and tools to research. If resources are not available to you and you don’t have the internet for long periods of time, preface your question with that and acknowledge that the person does not have to respond if your question is offensive. Again,it isn’t about getting it 100% right, but truly trying and prioritizing the comfort of the person you are asking.
When I confront people for asking a question with an assumption, I often receive an angry response. The fault is placed on me for not educating people, for not being cooperative, for being mean. This happens whether I answer or not. If I try to explain to someone assuming I can’t read that I, in fact, can read or use a phone or whatever, this is seen as rude or not cooperative. Even confrontational. This person comes away from the conversation now believing blind people are rude and angry. Usually they assume the blind person is jealous of them for being able to see. Which, in that instance, would not be true.
Making assumptions that a person cannot possibly do something because of their disability, especially when you are ignoring what that person says, is ableist. Pointing this out is not attacking you or even, necessarily, judging you. They are not calling you any other name, no matter what else you claim it means to you. (I once had someone claim that when I said the word ableism or ableist she heard the word bitch.)
Let’s Talk About Jokes.
This one is much harder to navigate, especially because blind people often make jokes themselves. However, I want to continue to consider the underlying assumption and judgement some jokes can contain. The joke is usually bad when it contains an ignorant assumption and falls apart when that assumption is corrected.
One example is that picture that often goes around with a person holding a white cane is using a phone. The joke asks what’s wrong with the picture. The problem is not that it’s a joke, as most people assume. The problem is the assumption underneath this particular example, which, by the way, can result in blind people being harassed and even hurt. Read my post here.
But it isn’t even the joke that is the problem. The reaction is. Instead of being accused to attacking someone for an innocent question, someone who points out the problem with a joke or even that it was hurtful, gets someone accused of not having a sense of humor or being mean. I wouldn’t feel comfortable doing that in real life, not outside of this blog. It is, honestly, too difficult and too uncomfortable.
The reaction people sometimes have is one of defense. They aren’t ableist, it was just a joke, can’t you take a joke?, why are you so serious?, you are ruining the joke, etc. People also assume disabled people can’t tell when someone has made a mistake and when they are genuinely asking a question or trying to call attention to something by making a joke. Disabled people are not trying to take all jokes away. They just want to point out when something is harmful. Doubling down about how that person can’t take a joke is a big problem.
Again, it isn’t that someone made a joke about disabled people. It’s the assumptions inside the joke itself that are harmful. For example, jokes about blind people going to cinemas don’t land because blind people do watch movies. The joke falls apart when you remove the assumption - and not knowing that it was an assumption is part of the problem in the first place.
Again, this post was never about not asking questions or not making jokes. It is about ways they can go wrong and how people can make it worse by getting defensive instead of being open to learning and moving on. Everyone makes assumptions or repeats jokes sometimes, and whether or not it becomes an argument is about being open to learning.
Disabled people aren’t out there looking for people to confront. Most of the time, they just want to go about their day or have a nice time with friends. If someone corrects you, no matter the setting, treat it as an opportunity for your growth and to make others feel more comfortable. Listen, apologize, acknowledge your mistake, and change your behavior.
My aim here is not to complain or to make people feel bad or even worry excessively. My goal was simply to share my thoughts on why these things can be a problem and offer suggestions on how to avoid them.
I hope this helps.
-BlindBeta
Note: I provide sensitivity reading for blind characters. See my Pinned Post for information.
imagine if disabled people could scroll through our own goddamn tags without being bombarded with OCs and medfet. imagine.
Hi there! Can you give any advice on how to write someone becoming disabled through a traumatic injury? The Transition phase particularly, the emotional aspect and things to consider and pay attention to? I've been disabled since birth so my journey is completely different to the one my character will have. And while I went through transition phases too they were never going from being abled to disabled but from my condition worsening over the years. I've done research but I figured maybe you have a mod who'd be willing to share some thoughts on this? Thanks!
Hi, you might find this and this post by Mod Faelan useful! You can also check out our #acquired disability tag :-) (smile emoji)!
Mod Sasza
*mom voice* You can get these words back when you know what they mean
I feel like people forget that pediatric illnesses generally last into adulthood like…childhood cancer survivors often have medical complications for the rest of their (adult) lives. My juvenile arthritis will be around when I’m 75. Crohn’s disease, cystic fibrosis, congenital heart defects - all of these things, when acquired in childhood, have lifelong complications. Childhood diseases aren’t just cute, happy kids smiling from hospital beds. Theyre pain and suffering and learning to live differently forever.
Raven, he/him, 20, multiple disabled (see pinned for more details.) This is my disability advocacy blog
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