I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.
If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.
I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.
And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.
And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).
I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.
I hate that there's no way to be disabled that people will accept.
If you show joy, or acceptance in your disability, you're not really disabled and no one will take you seriously when you do complain and well it can't be that bad and oh I'm sure you're used to it.
But if you're miserable then you're whiny and annoying and people hate that it's "all you talk about" and its always ugh you're always tired and can we please stop talking about this it's making me depressed and oh I'd kill myself if that happen to me.
If you're happy you have everything figured out and don't need help anyway but if you're miserable you're a whiny bitch that can't just suck it up. There's no winning
Asking someone you barely know what their disability is equatable to just coming up to someone and saying “hey what’s the most traumatic thing that’s ever happened to you?”
Able-bodied people assume most people with mobility aids ESPECIALLY wheelchairs, have been in some sort of traumatic accident, and yet y’all still come up to us asking.
laughs at how its less than a day since i answered this and my number has already gone up again 👍🏻👍🏻👍🏻
i get people telling me im a nihilist sometimes but im really not. i just dont shy away from talking about the “negative” parts of life because i think its an important step towards change.
i dont think we are doomed, nor do i think nothing matters. im angry. im upset. and i want change. theres a difference.
i think its dangerous to loop all angry people into nihilism.
oh wow, i love that honestly. it put into words exactly how ive felt about my acceptance of being disabled.
"Acceptance isn’t defeat: It’s a declaration of self-respect under irrefutable circumstances. This is where you are and you’re going to make the best out of every moment of it."
Ilana Jacqueline "Surviving and Thriving with an Invisible Chronic Illness: How to Stay Sane and Live One Step Ahead of Your Symptoms"
i’ve decided on which story i want to tell first. very excitedddd
Something that really bothers me about disability activism and representation is how people with gastrointestinal illnesses or disabilities continue to get the short end of the stick and that nobody ever talks about it because it’s “taboo”, which it absolutely shouldn’t be. We can’t be open with people IRL, even in disability spaces, about our conditions because they’ll either view us as disgusting or triggering or they’ll view us as sex objects because of their fetishes. We don’t fare much better in fiction, with GI disability rep being largely allocated to either grossout humor, the author’s barely disguised fetish, or just actual pornography about our conditions.
It sucks because I have a lot of health issues, and I can talk about my chronic pain or my stigmatized mental health conditions with no fear of being shamed, but it feels like w/ my GI issues I’m keeping a dirty secret because that’s how people - including other disabled people - treat these kinds of conditions. People like me shouldn’t be made to feel like we’re outsiders in our own spaces.
(Note 1: This post is not meant to kinkshame. I bring that topic up because unfortunately it IS some of the only rep we get, and we deserve representation that talks about our disability as a disability and not something sexually arousing)
(Note 2: Other disabilities/illnesses are treated this way too. This is just the one I have experience with.)
happy new year, i’m still disabled!!!!! crazy i know but here i am being chronically ill in 2025 like a loser