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Chronic Disability - Blog Posts

2 years ago

RB (reblog) if you are chronically online to cope with being chronically ill 🥲


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3 months ago

My insulin pump doesn't make me unattractive. Neither do my scars, or all the tubes that hang off of me, or the needles and ports and machines that are attached to me at all times. Parts of my body don't work like they should. I have neuropathy in my hands and retinopathy in one eye. My kidneys need help to work. I've been on beta blockers since my 20s because my heart doesn't work right. That doesn't make me undesirable. I'm worth having sex with. I'm worth pursuing romantically and sexually. I am a whole person that deserves love and to feel good about myself.

feeling sexy and being disabled are things that can exist together. I can have medical devices and a feeding tube and still feel sexy, and i really dislike that people think that the two are completely separate and cannot exist together. I'm allowed to feel confident and love myself and the way i look even if i look a little different, and every other disabled person is too. I love myself and i have a feeding tube, not i love myself but i have a feeding tube.


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4 years ago

Fatigue

I do not know why my fatigue has to do me wrong. I woke up exhausted and decided that I’d take a quick nap. I accidentally slept for five hours. Like damm that is a lot of time lost can y’all relate?


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4 years ago

Baby rant my bad

(I can’t make my text big anymore and I’m sad)

Ok heres the actual rant. I decided like an absolute idiot yesterday that I felt really good for the first time in a long time and that I wouldn’t use my walking aids. So I put on cute skinny jeans ,which are a big no during flare ups for me, I put on my cute Alice in Wonderland tank and shave for the first time in months and feel hella cute. Fix my hair looking all androgenous and made my non-binary/genderfluid Lesbian heart so happy . I go to my contacts fitting cuz I’m low vision blind as well and its the first time I’ve ever gone in without my aids there and people just seemed to treat me nicer tbh. Then I went home and held my snake and watched TV and it was going great. Now cut to this morning and I woke up in agony and can’t put pressure on my left leg or my left arm and I hate it here.


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4 years ago

Disability body positivity

Am I the only one who gets a little annoyed with the body positivity phrases ‘You are not your body’? Like yes I am my body. My body dictates everything I do and everywhere I go and how I experience life. Its ok that I have these problems and I’ll love my body anyway but I want people to stop telling me that I can love myself in spite of my body. I am my disabilities they define me but its ok to love and celebrate my disabilities. I know this is something abled people probably don’t think about too much but it feels patronizing.


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1 month ago

I’ve edited my goal down to $3600 for a studio apartment witch are around $1800 a month + one-time cost

Help me pay first months rent and move-in-fee

Hello everyone, My name is Tiffany I'm trans, autistic, disabled and cant work with chronic fatigue syndrome, executive dysfunction and I have avoidant personality disorder/high anxiety and don't have a social support network that is supportive of me being transgender I've never been employed and am basically unemployable I'm in the process of getting benefits like ssi, snap, medicare, and medicaid but in order to receive rental assistance I need to be able to pay first months rent and a move in fee but I'm practically unable to because of how little I'm getting right now and how fast the money goes due to things like food, my phone bill, some goes to my uncle's rent and bills, and I would just want some support temporarily until all these government assistance processes are completed witch would take long because first I need to find one available and the cheapest apartments I can apply for in my area are $1800 to $2300 plus security deposit then it would need to be inspected for approval and then hopefully I can finally live on my own planning to hopefully live on all that but its taking longer then expected and i would love to move out sooner then later so I can begin to live the way I want to live away from bigoted and abusive members of my family

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1 month ago

I've edited my goal down to $3600 for a studio apartment witch are around $1800 a month + one-time cost

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its been 17 days since i posted my crowd funding post and so far only one person donated $20 anonymously (thank you to that person) but I'm not getting what i need in time (apartments get taken fast) and i don't know where i should turn for help for donations and signal boosting


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1 month ago

Help me pay first months rent and move-in-fee

Hello everyone, My name is Tiffany I'm trans, autistic, disabled and cant work with chronic fatigue syndrome, executive dysfunction and I have avoidant personality disorder/high anxiety and don't have a social support network that is supportive of me being transgender I've never been employed and am basically unemployable I'm in the process of getting benefits like ssi, snap, medicare, and medicaid but in order to receive rental assistance I need to be able to pay first months rent and a move in fee but I'm practically unable to because of how little I'm getting right now and how fast the money goes due to things like food, my phone bill, some goes to my uncle's rent and bills, and I would just want some support temporarily until all these government assistance processes are completed witch would take long because first I need to find one available and the cheapest apartments I can apply for in my area are $1800 to $2300 plus security deposit then it would need to be inspected for approval and then hopefully I can finally live on my own planning to hopefully live on all that but its taking longer then expected and i would love to move out sooner then later so I can begin to live the way I want to live away from bigoted and abusive members of my family

Linktree
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2 months ago

Help me pay first months rent and move-in-fee

Hello everyone, My name is Tiffany I'm trans, autistic, disabled and cant work with chronic fatigue syndrome, executive dysfunction and I have avoidant personality disorder/high anxiety and don't have a social support network that is supportive of me being transgender I've never been employed and am basically unemployable I'm in the process of getting benefits like ssi, snap, medicare, and medicaid but in order to receive rental assistance I need to be able to pay first months rent and a move in fee but I'm practically unable to because of how little I'm getting right now and how fast the money goes due to things like food, my phone bill, some goes to my uncle's rent and bills, and I would just want some support temporarily until all these government assistance processes are completed witch would take long because first I need to find one available and the cheapest apartments I can apply for in my area are $1800 to $2300 plus security deposit then it would need to be inspected for approval and then hopefully I can finally live on my own planning to hopefully live on all that but its taking longer then expected and i would love to move out sooner then later so I can begin to live the way I want to live away from bigoted and abusive members of my family

Linktree
Linktree. Make your link do more.

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