I remember growing up and thinking that all my pain was normal. Being chronically ill is so strange. Whats normal for me is not normal for others.
I remember being a kid, sleeping through every recess, not playing with friends because even running around wasted atleast half a days worth of energy.
The older I got the more my exhaustion became worse. Idiopathic hypersomnia is draining my life away, I don’t know what to do.
I hate having IH (idiopathic hypersomnia), I just recently got diagnosed but this condition has made my life hell for years.
For years I would cry to my mom about feeling like my body was dying with me in it, the feeling of exhaustion never leaving me. My friends having to deal with me needing naps all the time. No matter how much I slept, I never felt okay.
I’m glad that I have a name for my condition and medication, but this has made my life hell. People would tell me to sleep more, exercise more, relax more, ect. I would and it would never work. I would feel like the laziest piece of shit ever.