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Potsawareness - Blog Posts

1 year ago

So recently I’ve bee considering applying for a balance and mobility support/service dog, but I want a bit more information from people who actually have them and aren’t paid to give a good review

(It’s also alarmingly difficult to find organizations that train balance and mobility service dogs)

I understand the financial drain and the time you need to put in to make the team function properly. I understand that a service dog is considered a medical device and not a pet, but they still need love and support and breaks like all loving things should. I understand that given my allergies a poodle would be the best option but I could also push for a less common breed.

Does anyone have an info, tips or blogs to recommend?

I really want to be independent once I move out and I really think a balance and mobility support dog would be helpful.


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2 years ago

My foot has been hurting for the last five days and is making it agonizing to try and do my PT.

Nothing looks wrong, it’s not a joint (I think?)

It doesn’t hurt all the time but if I bend my foot up towards my ankle it hurts or point it.

This is weird


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2 years ago

Me when I went to the endocrinologist and they assumed I didn’t know what my autoimmune disorder was. Not like I’ve been dealing with it for 4 years.

Didn’t even think to check me for what I was soon after diagnosed with by a geneticist.

My doctor shocked I know more about my debilitating condition than him

My Doctor Shocked I Know More About My Debilitating Condition Than Him

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2 months ago

Nothing like your hip hyper extending and limping to make you feel like Remus Lupin. ✌🏻


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3 months ago

I have daily floor time. I only cry when I choose to, and I only shake when the POTS refuses to release its grip on me.

obsessed with the girl who says that if you lie on the floor long enough you will start to cry and shake because your body is 'releasing excess cortisol' like i just think you might be going through something girl


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2 years ago

wheres the romance or “attraction” around disability? lets talk about how no im not wearing lingerie actually, its my back brace, tell me how they traced the indents of your compression socks. tell me what it felt like to be loved in a disability setting. or do you just not love me?


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Things my disability has made me more grateful for:

My support system. I have been around some, let's just say, very mean people in my life. I've curriated a chosen family I couldn't be happier with. With special thanks to my girlfriend and her family for giving me a temporary place to live and taking care of me

Self care. Before while I did take care of my body, I didn't take it as seriously as I should. When I had to use the restroom, shower, brush my teeth, drink water, eat I didn't always attend to my needs. Now a days, even though they are way harder to do, I put in extra effort. Because I deserve it

My art. I have a lot of self esteem issues with my art, and even have shut downs on occasions from a piece not being “perfect.” But at the end of the day, when it’s just me in bed, with my art book, and my markers, I can forget about being disabled. I can fully put effort into something I love and have worked so hard on. And my efforts pay off. I can tell my art is improving

No, I am not I am not glamorizing being chronically ill and disabled. This is the best way I’ve learned to accept and cope with it though


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TO ALL FELLOW CHRONICALLY ILL AND DISABLED PEOPLE

What would you like to see in artwork to help represent you? People with mobility aids? People that look like you? Give many any of your thoughts and ideas in the comments, my inbox, or my DMS


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Me: Before getting really sick I could easily go to bed around 9:30. Can I still do that? (´ . .̫ . `)

Body: Oh god no! You're staying up till 1 am without choice.

Me: Well at least I can sleep in-

Body: WAKE THE FUCK UP ITS 5 AM AND WE JUST HAD A NIGHTMARE

┻━┻ ︵ヽ(`Д´)ノ︵ ┻━┻


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My body: holy shit we just climbed a mountain. I think I might collapse

Me: bitch no we walked up the stairs


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