Potsie - Blog Posts
Potsies listen up
PRESERVE YOUR OWN GARLIC
Chop up fresh garlic and put it in a jar with olive oil and a shit ton of salt (the garlic will help to mask some of it so you can add more) And stick it in the fridge for at least a week before cooking with it.
I had some that was preserved for around a year and it was so good.
"These hands may be broken, but they can still be thrown."
- me to @ask-and-i-answer at Disney World
I wish I could miss school because of that...
I wouldn't be there the entire year
I am not going to school today because I have “dislocated my entire skeleton” in my sleep.
I found this amazing article about Broadway actors with disabilities and thought I would share.
"I'm okay." I say as my bones crack into a thousand pieces.
"It doesn't hurt." I respond when asked about bruises all over my body.
"Really, I'm fine." I tell my friend as I can physically feel my muscles separate from the surrounding tissue.
"I can make it." I assure my mother before entering a mall with no mobility aids.
"It's gotten better." I lie to my doctor.
bad pain day, 2023, me
alternate titles include “ouch :(“ and “my fucking hips hurt”
Me finding a new recipe I like: This is really good!
Also me, a Potsie: Now, how much salt can I hide in this?
I do the dancy dance to get in my panty pants.
Fuckin' Finally
FYI to sick or disabled folks and those who assist or care for them: Simplicity patterns has a new line of adaptive sewing patterns. Designs include tops with port access, clothing with velcro closures, bags and cushions for mobility aids, bibs, chemo hats, and more.
I’m excited about these because they are the first patterns of this kind I’ve seen anywhere. And Simplicity patterns are great for beginning sewists, with very clear step by step instructions and illustrations.
Patterns can be purchased here: https://simplicity.com/simplicity/adaptive/
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Have I told y’all about my husband’s Fork Theory? If I did already, pretend I didn’t, I’m an old.
So the Spoon Theory is a fundamental metaphor used often in the chronic pain/chronic illness communities to explain to non-spoonies why life is harder for them. It’s super useful and we use that all the time. But it has a corollary. You know the phrase, “Stick a fork in me, I’m done,” right? Well, Fork Theory is that one has a Fork Limit, that is, you can probably cope okay with one fork stuck in you, maybe two or three, but at some point you will lose your shit if one more fork happens. A fork could range from being hungry or having to pee to getting a new bill or a new diagnosis of illness. There are lots of different sizes of forks, and volume vs. quantity means that the fork limit is not absolute. I might be able to deal with 20 tiny little escargot fork annoyances, such as a hangnail or slightly suboptimal pants, but not even one “you poked my trigger on purpose because you think it’s fun to see me melt down” pitchfork.
This is super relevant for neurodivergent folk. Like, you might be able to deal with your feet being cold or a tag, but not both. Hubby describes the situation as “It may seem weird that I just get up and leave the conversation to go to the bathroom, but you just dumped a new financial burden on me and I already had to pee, and going to the bathroom is the fork I can get rid of the fastest.”
You don't feel like wearing your compression socks today?
That's fine,
But just think of how good your calves would look if you did.
I weeble and wobble and sometimes fall down.
Happy National Rare Disease Day!!!
February 28th is National Rare Disease Day because the 29th is the rarest day of the year.
How do you politely tell a doctor to fuck off?
Can we have cane nooks in public bathrooms?
Like I was just in a library bathroom and my cane kept sliding while I was washing my hands and it was super hard to hold onto my cane and wash my hands.
It would be helpful if there were dips in the counter in-between each sink so I can rest my cane in there and not have to worry about it falling.
I hate that my leg hairs hurt from wearing compression socks daily. Like, yes I put lotion on every night and yes I have days off, but can my pants just not tough my leg without feeling like I'm getting stabbed with safety pins??!?
The universe cursed me with being a hairy person with extra long legs and not energy to shave them.
Question fory adult Potsies - what were some signs that you were not going to outgrow POTS? I have been having symptoms as far back as I can remember and want to know how I can prepare for my future.