Disabilties - Blog Posts
Disability
Sources: SigningSavvy, Lifeprint, ASLDeafined
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Disability in American Sign Language. Handshapes D and A with the pattern of the disability pride flag: green, blue, white, yellow, and red diagonal stripes over a dark grey background.
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The faded black background represents "the anger and mourning over the eugenics and the neglect that disabled people have to fight against."
Red represents physical disabilities.
Gold is for neurodiversity.
White represents invisible disabilities and disabilities that haven't yet been diagnosed.
Blue stands for emotional and psychiatric disabilities, including mental illness, anxiety, and depression.
Green is for sensory disabilities, including deafness, blindness, lack of smell, lack of taste, audio processing disorder, and all other sensory disabilities.
Source
Joint pain tips from someone “too young to have chronic pain”:
[I’m not a doc or a medical professional, take with a grain of salt]
- NSAIDs like ibuprofen/aleve are hard on the stomach and liver. If u take it consistently, consider lidocaine pain patches, tiger balm, or topical NSAIDs. (Still bad for liver with consistent use, but not on the stomach obv)
-foam rollers are real nice for thigh or back/neck pain. If you need it for shoulder stretching, make sure to get one long enough to lay ur whole spine and head on.
-rly good shoe inserts are stupid expensive but getting properly sized for one at a place like REI can rly save you a lot of foot, ankle, and knee pain.
-speaking of shoes plz find ones that have enough room for the tootsies. We’re talking abt bone health here.
-you can use KT or other athletic tape to give minor support, compression for medium, and splints/braces for more serious support. Don’t let braces take over keeping ur body in shape tho.
-in my experience, tube/sock-like braces stay in place the best. I’ve tried the kind that Velcro and they slipped constantly.
-if u overwork a tendon, muscle, or joint, it can take a lot longer for it to heal then when it just stops hurting. Be careful to reintegrate activities slowly after an injury.
-while it kinda makes ya feel silly, walking “like a robot” can help hypermobile/ligament laxity folks to keep proper motion in mind
-upside down criss-cross and w-sitting are horrendous for your knees and make your PTs sad
-if you are doing arm exercises, try not to extend your arms back beyond the line of your shoulder
-to my ND folks: try to rest your arms sometimes, Trex arms are comfy but bad for circulation and joints
-if it feels like your eyes are trying to burst outta ur skull sometimes it means you need to lower inflammation in your sinus.
-for my bra-wearing folks: racer-backed bras hurt the upper traps less and distribute weight better
-drink water my dudes. Ur body hates life w/o it
So anyway a nurse made me cry today
Pros of chubby gf
- soft
- nice hugs
- thigh pillows??? Tiddy pillows??
Cons of chubby gf
- none
Pros of skinny gf
- fits in ur arms rly nicely
- ur hoodies are too big on her which is beautiful
Cons of skinny gf
- none
Pros of muscled gf
- abs?? Biceps??? Please???
- strong gf pick me up pls
- most likely works out a lot which is hot
Cons of muscled gf
- none
adding on SERVICE ANIMALS! Insurance does not cover them. A few orgs provide them for free, yes, but 1) you have to live in the area they service 2) you still have to pay for travel to and from graduation, and for the upkeep of the dog 3) you have to hope one of these orgs trains the kind of dog you need 4) you have to wait years until you're matched, bc these free programs are the most popular. Money would help immensely.
money is such an underrated accessibility option.
like people want to think any disabled person who is after money is morally suspect some way, because they're not asking for "treatments" or "accommodations" like a lot of our issues can be fixed way more easily with money. can't drive? paying for a taxi is often one of the more accessible alternatives. can't cook? you can pay more to have prepared food delivered to you. food restrictions? that food straight up costs more money. can't clean? you can pay for someone to do that. house inaccessible? having (lots) of money can help with that, you get the gist.
having money won't make us abled. it also won't stop our symptoms from being distressing, painful, or debilitating. but there's a huge gap in experience between the average poor disabled person and someone who's actually wealthy. you can buy your way out of some of the difficult situations most disabled people are left to rot in. wanting money, needing money, asking for money is pretty natural when it's such a useful tool. why get so weird about disabled people wanting money like i'm pretty sure everyone wants money anyway
It's actually so comforting to have classmates with mental illnesses or issues. Like, yeah, I'm not alone in this shit!
The guilt after getting ill is consuming me away. I wish, I was able to change or heal.
When you suddenly realize that you need to do your lessons, but your whole body is hurting and also twitchy and a small activity could turn you into a shaking mess:
Sometimes it amuses me how if epileptic will have 6 seizures in one day, they will be hospitalised immediately and given treatment, while with dyskensias they just... Give the "Well, damn, but you're conscious during seizures." Yeah, I am, but why the fuck I had 6 in a row?? Sometimes, I think that tearing my ligament wouldn't be as hard as getting treatment, lol.
Speaking about dyskinesia always makes people assume that you're talking about FND. Errr....
When your illness is so rare, that you've 62% chance of being misdiagnosed and everyone who you find on YouTube is a random old guy and just a 18(?) years old guy:
Calling every chronic illness a "disability", is low-key stupid, don't y'all think like that? It is almost as if y'all tried to put a label on everything you don't understand. Sometimes, illnesses can, just... Not fit in your expectations. And y'all should accept it. Repeat after me, "Not every chronic illness is a disability!".
Not all seizures are epileptic, and not all non-epileptic seizures are PNES. Hope this helps!
Years will pass and I will never understand, why, just why, there's only 2 sides when it comes to my illness? Some of you immediately start to pity and pamper me, treat me as if I barely understand something, while the other consists of people who are almost the same as the 1st type, but these are trying to do it differently, trying to look caring and understandable, but in the end they are almost the same. And also, since when the phrase "I'm not letting my illness stop me." Became something ablestic? No, I don't want to treat myself as a snowflake. I don't want to do something less, because YOU think that I'll have a flare up. Flare ups are only MY and MINE DEAL, NOT YOURS. I don't want to sit and whine about how fragile my body is. This only makes me look WEAK. Since when I need to work less, just because I'm ill? Maybe I WANT to work?? Maybe I CAN work?? Maybe, it is YOU the one who sees only code in my med card?!
And still, I'm curious how an appointment which I used to go to every week a few months ago, turned into something I'm afraid of. Making me have flashbacks over and over when I just hear the word "neurologist. Made me have a whole panic attack just because I need to go to a doctor. No, please, I don't want to be treated anymore... Can't you just avoid me? Don't remember about my disease? Make me live a normal life?
To be honest, after years of searching, trying to find my diagnosis, I just... Stopped caring about this. I even started to like this thing, I know, it harms me, but do I want to treat it? No. It's a part of me, that I like.
When the pain hits THAT hard that you need to work while laying down
The doctors had been neglecting me for more than a year, and the day after yesterday I casually had tremors, though I needed to stand up. It wasn't too hard, though I walked like a soldier, cuz my legs were too stiff. And yesterday and today, I noticed a glue-like feeling in my joints, as if some liquid was there, plus it's SO FUCKING PAINFUL to bend it... It starts to hurt, burn and the glue feeling gets worse.... I don't know what to do... Looks like I ended up damaged due to the malpractice of doctors!
I hate how expensive genetic tests are. Like what do you mean I should pay 1000-2000$ and wait for half a year to get a proper diagnosis? And if only my disease was simple to see on MRI or EEG... This thing is only seen on a few scans and mostly you need to take a genetic test. BUT THEY'RE SO FUCKING EXPENSIVE... Please, someone, buy me this test, and I'll kiss your legs
Am I disabled if I have to be homeschooled because of my chronic illness? Asking out of curiosity.
No. My epilepsy is NOT a disability. Why though? Because it doesn't prevent me from doing ANYTHING. It doesn't affect me all the time. Yeah, someone could say "B-but seizures are a disability!!!" Yeah, they could be. But, have you read the criteria to get disability with epilepsy? No? Okay, I'll list.
– Frequency of seizures. If they are too intense and happening too often (for example a few times per day.)
– Decrease in intelligence.
– Mental issues.
– Impaired ability to move.
– Developmental disorders.
So, that's why epilepsy doesn't make you automatically disabled, it just makes you ill. So, I prefer to use the term "sick, but able-bodied." Instead of disabled. Y'all should accept that disability is a status given by law. So, if you're getting money for your disability, and you have this status in your documents – you're disabled. Or at least if your disease is affecting you most of the time like POTS, fibromyalgia, arthritis etc. you're disabled.
But even if chronically ill means being disabled... I still prefer to be called able-bodied. I'm not disabled. So I don't deserve to be called disabled. Leave space for someone else, not me.
I'm waiting to be hated for my opinion. I don't mind anymore. I don't want to call myself disabled and bury myself in my illness. If I'd be hated for that, but I'd still be able bodied, I don't mind. You can call me like you want, and call yourself a disabled if you have epilepsy, because I'm talking about MY CASE not YOURS.
Thanks for reading. Stay healthy.
The sudden urge to delete all my disability related posts, so people won't see and won't like it, so it won't remind me of being sick>>>>>
To be honest, I feel kinda remorseful for making posts with hashtags like "disabled" and others. Why? Because thinking about my diseases constantly only worsens my mental health. I literally was about to go back to cutting or mutilating my body. Plus, I don't really think that I'm like... Disabled? Like my symptoms aren't enough to be called disabled or something... So, I think that I won't be making posts like this anymore... Or do them rarely. Hope y'all will understand. Thanks for being with me in those times. Take care of yourself.
Invisible disability is still a disability. Even if you don't see it.
Trying to dump my sufferings to feel healthy again. I can't bear it anymore.
People's honest reaction when there are MUCH more physical diseases than infections ones or breaking your limb
